My husband's behaviors are totally erratic sometimes 24/7, sometimes within a week, sometimes over a few weeks. I read that this is a sign of degeneration of brain cells and poor vs. good oxygen supply. It is very baffling to live with and witness. I can only describe it to a "layperson" as caffeine vs. decaffeinated behavior.
Thank you @A myALZteam Member
It helps knowing that Iām not fabricating up and down behavior cycles š and changes in symptoms.
My hubby has not been officially diagnosed but our family doctor says MCI. He is somewhat in denial thinking it's normal for a 75 year old!
Besides all his memory and cognitive issues, his PT (after shoulder surgery) recommended a neurologist for neck and hand tremors.
I'm nervous about what to explain to Dr since my loved one is pretty adamant these things aren't happening.
I told our family Dr either my hubby or I needed anxiety pills. He said I needed to get out more. No way. He getsā¦ read more
If your doctor is dismissive about your anxiety, you may need a new doctor. Family doctors are not always the best suited to deal with dementia patients and their caregivers. Some neurologists Iā¦ read more
My partner has several medical issues requiring regular doctorsā visits, but recently he just refuses to see even his favorite doctor with whom he had a great relationship for years. When asked why he just says āI donāt knowā, his standard answer for every question.
Thanks, I never thought of that. Although he also refuses virtual visits.
I've watched my dad take the SLUMS about five times. The same questions every time, every six months. It is painful to watch and he's gotten worse at answering them. That being said, does anyone else think that their loved one could do better if the questions were asked more slowly and clearly?
I've seen a few different people ask the questions (an assistant) and some read the questions SO fast, move on the to next questions quickly, etc. that I really don't think we're getting an accurateā¦ read more
@A myALZteam Member I really appreciated reading your thoughts, thank you. Good points. My best to you and your family. I admire you and your attitude.
I knew I couldnāt leave H alone when he began having great difficulty using his cell phone. He couldnāt make it work, even to answer when Iād try to call. One time I came home from a 30 minuteā¦ read more
This may not be the best question, but I would like to know how others are dealing with this.
How do you work with you LO as far as protection used and clean up from BM's (at home and away)?
Can you take your LO out and about for a few hours or the day? What kinds of items do you carry with you when you are out?
Do you take your LO to your own Dr. appointments? Can you safely leave them in the waiting room?
I may have more such questions down the road.
hi we use over the toilet handicap chair style with adjustable legs and hand rails there is insert if need because of high rise =ck for ideas from medical supples onā¦ read more
my hubby has 4 children. They are hardly around and yes i know its hard to see their dad fading away and they cant handle it. But boy they can tell me how to do things and so on and have the nerve to ask me why I AM STRESSED or depressed. REALLY. How can they give me advise when they have no clue what he is like or anything cause they are not here. What is the nicest way of telling them to shut up. If they care so much then where are they. Yes i know they have lives also. I feel that if iā¦ read more
Yes, they spend 8 days here and think they know a lot! I've been here close to 4000 days and had probably 4000 naps with her. I'm sure I've cooked 4000 meals, they have cooked maybe 2! I told themā¦ read more
Memory care facilities advertise that they can take care of our loved ones, even to their dying day. But anyone who has a loved one in memory care, knows that, other than providing meals for them, administering their meds, and keeping them in a safe (locked) environment, thereās very limited ācaringā. This works ok for the early stages of dementia. Not so much, as the disease progresses. Seems like the only choices are to add 1x1 private care or allow the facility to medicate them until theyāreā¦ read more
I have known caregivers who regularly went to Memory home after their patient to visit every day.....
Hubās doctor finally agrees that he needs to see a neurologist for a MRI. He is resisting any exam or meds. Doctor wants to rule out several possibilitiesā¦ basically FTL, early onset ALZ or tumor. So close to a dx and yet so far. Any advice from those who have been there?
Lynn, my friend told her LO that his MRI was necessary because the doctor needed to know what kind of medication he needed and the MRI would help with that information. He probably has Frontal Tempā¦ read more
My LO has Alzheimerās Dementia, had a Driving Assessment, failed the clinical portion, hence doctor has requested that his driving priveleges be revoked with the state. Heās bored at home, wants to get a job. We live in Minnesota. Any help to steer me in the right direction would be very appreciative.
Thank you.
Thank you, I will reach out to them.