How Do You Get Your LO To Go To Neurologist Or Get Scan When They Don’t Want To Go? | myALZteam

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How Do You Get Your LO To Go To Neurologist Or Get Scan When They Don’t Want To Go?
A myALZteam Member asked a question 💭

Hub’s doctor finally agrees that he needs to see a neurologist for a MRI. He is resisting any exam or meds. Doctor wants to rule out several possibilities… basically FTL, early onset ALZ or tumor. So close to a dx and yet so far. Any advice from those who have been there?

posted July 7, 2023
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A myALZteam Member

Hi Lynn - I had the same challenge with my Mom. She was really resistant to starting the diagnostic process and didn’t want to tell her PCP (or have me tell her) that there might be some concerns about her memory. In addition to asking her to humor me and just do it because I was probably just being paranoid (I wasn’t, of course, but I thought she might be motivated by “proving me wrong”), I told her that it was more likely than not that her problems were fixable. Maybe she had an operable brain tumor or just had a deficiency of Vitamin B. I told her that there were solutions to the problem and the sooner we found out what was wrong, the sooner it could be fixed. So a little bit of white lying on my part and a little bit of self delusion on her part got us to her PCP where she let me describe my concerns. That got us to a neurologist, an MRI, and a neuropsychologist. It was, of course, what she and I feared and once we had a diagnosis, she absorbed the information pretty readily. The neuropsychologist also pulled me aside and told me that although I would be receiving the official diagnosis in a bit when we met with the neurologist again, it was definitely clear to him that she had ALZ. I was thankful because it gave me a few weeks to figure out how to make that day really supportive and prepare for how my Mom might react. Good luck - sending hugs and support!❤️

posted July 7, 2023
A myALZteam Member

Someone commented on another post that she asked her husband to go with her for her Dr appointment so he didn’t know that it was really for him until he was already there. Maybe ask his PCP for the neurologist appointment and tell a little white lie. Usually the Dr talks to both of you anyway. I’m not a proponent of lying but sometimes it’s better for them than the truth.

posted July 8, 2023
A myALZteam Member

The impetus to finally getting my husband officially diagnosed was that, in order to be approved for an implanted pain pump, to address chronic/intractable back pain, he needed to be diagnosed with a terminal disease. That’s why he agreed to be tested.

posted July 8, 2023
A myALZteam Member

Oh… I understand your struggle.. my husband always refuse to go to the any doctors office . His last MRI , I requested Open MRI , it is a little better than regular one , he cursed throught out the procedure, but i managed had him done this . If your husband has never had it , he may has to do that at least once. I told my husband if he would’t do this they would not pay your SSDI and we would not have any money.. (a lie , white lie) Now I have him take anyi anxiety medication before anything like this . Maybe his doctor can give him some medication to take before any event like this .
Neurologist wants to see him every 3months , but i always try to make it 6months , my neurologist will not do Video Appointment , I am thinking about changing the doctor who does video appointment or not going to Neurologist at all ….
Hope he can be distracted and you can take him🙏

posted July 8, 2023
A myALZteam Member

I had problems with mom. I think of her she needed to take brain vitamins and she had to have test so doctor would know what vitamins they give her v my mom never took an aspirin. But everything went tied out. She got mri and eeg and bloodwork. Me she takes ned. Going on four years. She thinks it's brain food, I don't like to lie but had no choice. I'm her care give 24/7. Lives with me and my husband. At least I had the room my 3 children are 2 married my son engaged. But mom was in 80s and she believed what I said. Good luck🙏

posted August 8, 2023

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