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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
August 31, 2019
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Answer Summary

Members deeply connected over the challenge of anosognosia, the condition where individuals with dementia do not recognize their diagnosis,... Read more

Members deeply connected over the challenge of anosognosia, the condition where individuals with dementia do not recognize their diagnosis, with many sharing that their loved ones either deny having a problem or become angry when the topic is raised. Several members described coping strategies including avoiding direct conversations about the diagnosis to prevent agitation, reframing the issue by talking about specific symptoms rather than dementia itself, and recognizing that forgetting the diagnosis can sometimes be a merciful aspect of the disease. A recurring theme was the tension between wanting honesty and acceptance versus protecting loved ones from distress, with members finding comfort in knowing this experience affects roughly 40% of dementia patients and is a symptom of the disease rather than stubbornness.

A myALZteam Member

Thank you Lauren, i have had the same experience. I suppose it is both a blessing and a curse. It does make it harder for the caregiver sometimes.

September 8, 2019
A myALZteam Member

My husband blames his memory issues on anything other than Alz.. Oddly enough, a few weeks ago when we were still awake at 2:00 a.m., we had tea in the kitchen and he was absolutely clear-headed and actually asked questions about the Alz. The next night, same thing at 2:00 a.m.; he asked questions, I answered them without saying that it is a terminal illness. Those were the only times he asked any questions and is back to denial again. No point in forcing him to acknowledge it as it will only make him more agitated.

September 7, 2019
A myALZteam Member

My dad is told on different occasions his diagnosis and thanks to this disease, ( meant harshly) he forgets what we tell him.

September 6, 2019
A myALZteam Member

My wife was devastated when we got the diagnosis 3 1/2 years ago, but now we talk about ALZ together and with others. I'd say it depends on the person. You know your Mom better than anyone, so be comfortable with how you tell her or don't - also, she may know more than you think she does, but just doesn't want to say it out loud

August 31, 2019
A myALZteam Member

Mom says when she quit working so did her memory. We have not told her the diagnosis of ALZ. She has difficulty with short term memory so telling her would just upset her for the moment. Trying to focus only on the positive.

August 31, 2019

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