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A myALZteam Member asked a question 💭
Gaithersburg, MD

It seems to me that most people hire professional caregiving for immediate deployment.

My wife and I life in independent living at a CCRC. We are not yet in need for outside caregiving for her, but I worry about her needs if I should become incapacitated. Ideally, I would like to have an arrangement in place that could be “turned on” quickly at some future date.

I have reached out to some nearby agencies, but they don’t seem geared toward making an arrangement that would kick in at an… read more

March 28
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A myALZteam Member

Thanks for this, Helen! What you write is logical, but the social work department at my CCRC is utterly worthless (and there is no "life care coordinator) and will not provide the assistance you suggest. I will have to contact the senior leadership of this institution (they already know me) to get this worked out and that is indeed what I'll do.

March 28
A myALZteam Member

@A myALZteam Member: The myALZteam response above is quite good.

Generally speaking, when someone needs the level of medication management that you describe, and has no “significant other” to provide the care that’s needed, Assisted Living is the appropriate level of care — and isn’t having ready access to appropriate care, when and as needed, exactly why you chose to move into a CCRC? Of course it is! Congratulations to you, for already having a solid plan in place.

So maybe you simply need to familiarize yourself with the Assisted Living Facility within your CCRC, and make sure that the Life Care Coordinator at your CCRC knows what your wife will need, if and when something should happen to you.

If your wife’s file is properly documented, then when the time comes, they’ll know what to do, and things should flow smoothly, right at your CCRC: your wife would simply be “stepped up” from an Independent Living unit to an Assisted Living unit.

One more note: I just want to add that medication management costs a lot because in most areas (probably all, but I’m not certain of the laws in all states) medication management isn’t something that can be done by an Aide or Home Care provider. It can only be handled by a licensed Nurse (or in an Assisted Living Facility, by a licensed Medical Technician).

March 28
myALZteam

How can you prepare for future caregiving needs while living in a CCRC?

Your proactive planning shows great care for your wife's future needs. Here are some practical steps to consider:

Start with Your CCRC Resources

Since you're already in a CCRC, check what services they offer. Many have care coordinators who can help Show Full Answer

How can you prepare for future caregiving needs while living in a CCRC?

Your proactive planning shows great care for your wife's future needs. Here are some practical steps to consider:

Start with Your CCRC Resources

Since you're already in a CCRC, check what services they offer. Many have care coordinators who can help arrange services quickly when needed. They may also have preferred agency partnerships or on-site staff who could assist with medication management.

Build Relationships Now

Even if agencies aren't used to "standby" arrangements, consider:
- Meeting with 2-3 agencies to establish a relationship and get pre-qualified
- Having them assess your wife's needs now so they have her information on file
- Asking if they offer "priority placement" for established clients
- Requesting a care plan be drafted that can be activated quickly

Address Medication Management

For the medication challenge specifically:
- Ask your CCRC if nursing staff can provide this service
- Look into automated medication dispensers that alert when doses are due
- Consider having a pharmacist review if any medications can be consolidated to fewer daily doses
- Explore whether a visiting nurse (rather than general caregiver) might be more cost-effective for medication-focused visits Prepare Your Support Network

Since your brother-in-law and friend would step in initially:
- Create a detailed care binder with medication schedules, doctor contacts, and daily routines
- Introduce them to potential agencies now so they know who to call
- Document everything about your wife's care so they're not starting from scratch
- Consider scheduling a trial run where they manage care for a day while you're still available to guide them

Choosing an Agency

When evaluating agencies:
- Contact your local senior center or elder care office for recommendations
- Ask your wife's healthcare provider which agencies they've seen provide quality dementia care
- Request references from current clients with similar needs
- Ask about their staffing levels and backup plans if a caregiver is unavailable
- Inquire about their experience with Alzheimer's care specifically

Your planning now will make a difficult transition much smoother if it becomes necessary.

March 28

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