Connect with others who understand.

  • Learn from expert-reviewed resources
  • Real advice from people who’ve been there
  • People who understand what you’re going through
Sign Up Log In
Powered By
Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
February 27, 2025
 · 
Reactions

Answer Summary

Members shared deeply honest reflections on whether their loved ones could summon help in an emergency, with most acknowledging their care... Read more

Members shared deeply honest reflections on whether their loved ones could summon help in an emergency, with most acknowledging their care recipients could not and emphasizing the critical importance of the caregiver's own survival. Several members described protective measures they rely on, including Apple Watches that detect falls and automatically call 911, Lifeline alert systems, and Medline watches, with one member noting these tools provide essential security when living alone or caring for someone unable to use a phone. A recurring theme was the difficult but necessary recognition that safety planning must include the caregiver's wellbeing, as tragically illustrated by one member sharing the story of Gene Hackman and his wife, where the caregiver died first and the person with Alzheimer's was left without help.

A myALZteam Member

@A myALZteam Member: Your first response to this question ("Good question to consider") is very honest and thought-provoking, and the excellent questions you asked have been rattling around in my brain ever since I first read them:
"Just remember, if you don't survive, who will provide for them?
"In fact, who will make the tough decisions and who will make sure they are safe?
"Who will even visit with them?
"I know this isn't exactly the question being asked but they are all related;
"How do they function without you?"

Those are all reasons why my son resides in a facility; and time will tell whether I will be able to continue caring for my husband at home, or not. But you're absolutely right: the Caregiver's survival is critical.

March 2, 2025
A myALZteam Member

Lifeline gives me a sense of security.

March 30, 2025
A myALZteam Member

A scary statistic but underscores the need to have plans which can address this possibility.

March 10, 2025
A myALZteam Member

Good question to consider. I speak from past experience... my wife could have provided this help until her last three years. Her final two years were spent in LTC, in part, because of this very issue. It became clear during those waning years that not only could she not help herself, she would likely not perform any emergency function of any kind for herself or anyone else. Caregivers must include in their considerations for that loved one, no matter how many times you said you would never put them in long term care - we all said it and some never did - those of us who did, made that change as much for the safety and continued care of that person as anything else. Just remember, if you don't survive, who will provide for them? In fact, who will make the tough decisions and who will make sure they are safe? Who will even visit with them? I know this isn't exactly the question being asked but they are all related; How do they function without you?

February 27, 2025
A myALZteam Member

I believe all of these people, except one, in effect said, no. Those saying they could activate another device means that they believe they could save themselves - not, the loved one saving them.

March 2, 2025

Related Questions

View All
A myALZteam Member asked a question 💭
Loomis, CA

A myALZteam Member asked a question 💭
Lawton, OK