Why is it that some days my spouse is great and I wonder if the diagnosis was correct, then the next day he is so off that I have no doubt the diagnosis is correct? Do others experience this
Thank you. I do have a lot of support which is definitely a help. I find I can handle anything when I remember I’m not the only one facing this. As a former ministers wife I agree with the comfort lying. My spouse is becoming quite the hoarder and I have to find times to throw things away that no one needs to be keeping. Of course that meant overcoming guilt for doing it.
YEP! With MCI, then Early Stage ALZ, I have ups and downs, but still function independently and try to be useful! Ya just gotta enjoy the ride, on those "up days".
Oh I hear you! The guilt-keeps me w/headaches, neglecting my house work, and losing sleep. When she's my mom, and we can connect, laugh, play games, work puzzles--GOOD. When she's the "dementia mom" , I'm awful, doesn't care about her, I can go to "H"., she can't figure out why she can't go home w/me (everyday, sometimes more that once). I'm in a support group, and the facilitator said there is nothing wrong w/comfort lying. (was a ministers wife). Is there a support group in your town? Check w/ social services.
Thanks for this poem. I think I'll put it where I can see it but he cant.
Most definitely the disease is a yo yo. Read as much as you can about Alzheimer. Many good books out there. They say the disease is a slope, slowing going down. Just remember he/she can’t help it. Here is a poem to read each day.