Roller Coaster Ride | myALZteam

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Roller Coaster Ride
A myALZteam Member asked a question 💭

Why is it that some days my spouse is great and I wonder if the diagnosis was correct, then the next day he is so off that I have no doubt the diagnosis is correct? Do others experience this

posted January 7, 2023
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A myALZteam Member

Thank you. I do have a lot of support which is definitely a help. I find I can handle anything when I remember I’m not the only one facing this. As a former ministers wife I agree with the comfort lying. My spouse is becoming quite the hoarder and I have to find times to throw things away that no one needs to be keeping. Of course that meant overcoming guilt for doing it.

posted January 15, 2023
A myALZteam Member

YEP! With MCI, then Early Stage ALZ, I have ups and downs, but still function independently and try to be useful! Ya just gotta enjoy the ride, on those "up days".

posted January 7, 2023
A myALZteam Member

Oh I hear you! The guilt-keeps me w/headaches, neglecting my house work, and losing sleep. When she's my mom, and we can connect, laugh, play games, work puzzles--GOOD. When she's the "dementia mom" , I'm awful, doesn't care about her, I can go to "H"., she can't figure out why she can't go home w/me (everyday, sometimes more that once). I'm in a support group, and the facilitator said there is nothing wrong w/comfort lying. (was a ministers wife). Is there a support group in your town? Check w/ social services.

posted January 15, 2023
A myALZteam Member

Thanks for this poem. I think I'll put it where I can see it but he cant.

posted January 8, 2023
A myALZteam Member

Most definitely the disease is a yo yo. Read as much as you can about Alzheimer. Many good books out there. They say the disease is a slope, slowing going down. Just remember he/she can’t help it. Here is a poem to read each day.

posted January 8, 2023

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