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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myALZteam Member asked a question 💭
Haddon Heights, NJ

Why is it that some days my spouse is great and I wonder if the diagnosis was correct, then the next day he is so off that I have no doubt the diagnosis is correct? Do others experience this

January 7, 2023
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Answer Summary

Members connected over the unpredictable nature of dementia, where loved ones can seem completely themselves one day and noticeably declined... Read more

Members connected over the unpredictable nature of dementia, where loved ones can seem completely themselves one day and noticeably declined the next, leaving caregivers questioning diagnoses and riding an emotional roller coaster between hope and grief. Several members shared practical coping strategies, including reading Alzheimer's resources, using supportive poems as daily reminders, joining support groups, practicing comfort lying to reduce distress, and finding small joys through walks, puzzles, music, and photos during good moments. A recurring theme was learning to let go of guilt, accept the disease's inevitable progression, and treasure theconnective moments while they last rather than fighting the reality of what cannot be changed.

A myALZteam Member

Thank you. I do have a lot of support which is definitely a help. I find I can handle anything when I remember I’m not the only one facing this. As a former ministers wife I agree with the comfort lying. My spouse is becoming quite the hoarder and I have to find times to throw things away that no one needs to be keeping. Of course that meant overcoming guilt for doing it.

January 15, 2023
A myALZteam Member

YEP! With MCI, then Early Stage ALZ, I have ups and downs, but still function independently and try to be useful! Ya just gotta enjoy the ride, on those "up days".

January 7, 2023
A myALZteam Member

Oh I hear you! The guilt-keeps me w/headaches, neglecting my house work, and losing sleep. When she's my mom, and we can connect, laugh, play games, work puzzles--GOOD. When she's the "dementia mom" , I'm awful, doesn't care about her, I can go to "H"., she can't figure out why she can't go home w/me (everyday, sometimes more that once). I'm in a support group, and the facilitator said there is nothing wrong w/comfort lying. (was a ministers wife). Is there a support group in your town? Check w/ social services.

January 15, 2023
A myALZteam Member

Thanks for this poem. I think I'll put it where I can see it but he cant.

January 8, 2023
A myALZteam Member

Most definitely the disease is a yo yo. Read as much as you can about Alzheimer. Many good books out there. They say the disease is a slope, slowing going down. Just remember he/she can’t help it. Here is a poem to read each day.

January 8, 2023

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