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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
A myALZteam Member asked a question 💭
Naples, FL

My husband is in our community's care center, memory section, waiting on a memory unit to come available in the assisted living. He has lewy body, but is doing better since being on the right medication for him. (Sleeping now and no hallucinations for a number of weeks). He doesn't see the lack of executive function. He doesn't understand why he can't come home with me at night. We've been married 40 years and I 💘 him so much. His anxiety builds whenever he starts to think of me going home for… read more

February 3, 2021
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Answer Summary

Members responded with deep compassion to someone struggling with how to explain to her husband with Lewy body dementia why he cannot come... Read more

Members responded with deep compassion to someone struggling with how to explain to her husband with Lewy body dementia why he cannot come home, offering both emotional support and practical language to use. Several members suggested reframing the conversation around his need for constant professional medical care and safety rather than blame, with one member sharing how this approach helped in a similar situation with her own son. A recurring theme was medication management for Lewy body symptoms, with multiple members discussing Seroquel (quetiapine) as a helpful treatment for hallucinations and sleep disturbances, while emphasizing the importance of working closely with a doctor to find the right medication for each individual.

A myALZteam Member

How about something like: he needs constant, professional medical attention which you cannot provide at home. For his safety and comfort, it is critical that he be somewhere where he can get the support he needs.

February 4, 2021
A myALZteam Member

My husband was put on Seroquel. Generic is Quetiapine. He was taken off all others that dealt with his issues (before we knew, and after he was seen by a neuro psych doc). This has helped him very much. Every case is different, so check with your doctor. You are in my prayers.

February 6, 2021
A myALZteam Member

Thank you..I will certainly incorporate that into our conversations. I appreciate you responding to me.

February 4, 2021
A myALZteam Member

My heart sunk upon reading this ! I had to do it with a son ! God help you I hated it.

February 3, 2021
A myALZteam Member

I pray it will continue to help.

February 23, 2021

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