I have to agree with calling ahead and see how things are going. Save some wear and tear on yourself-we have to care for ourselves too.

Speaking from the POV of the LO. I suspect I won't remember if my person visited or not. I suspect I will be sad that no one ever visits me (since I won't remember if they have). I'm hoping that I will have lots of pictures around me. I'm hoping I will remember who the people are in those pictures. I know that social interaction is important, though. So i hope you are able to visit as often as you are able to! Also, I really like when people write me letters or send me photos with a written note on the back for who they are. Even if I can't remember the visits, I can look at the pictures and see that the parole in then are happy.

My husband is at home with me, he sleeps from 10:00 pm to between 3 and 4:00. Pm. He’s well, at first I was setting alarms everywhere so he’d get up, now I just let him sleep, he gets up eventually.

Thank you for your perspective. I will remember your words

Quite honestly, when my mom declined? It didn’t matter to her any longer. I did the same thing, though, I showed up every day only for 15 minutes some days? I would always play music and sing to her, and I think it was more for me than her? However, sometimes? She would try to sing along! Don’t put too much pressure on yourself though. I basically showed up every day to make sure that staff knew that she had somebody watching out for her that was engaged and involved. Other days? People from church would visit to do the same thing and give me a break. I think it really depends on the stage of the disease? But at the end, and by the way, Hospice said that she was a very rare case. My mom lived on hospice for over three years before she finally passed.

Supposedly it doesn’t take that long in many cases. At the end of the disease? See if you can get any seniors or friends from church to visit to give you a break and don’t feel you have to go because sometimes?

At the end, mentally and emotionally it’s really really really hard on us so garner as much support as you can.

Give yourself a break and most importantly- be kind to yourself 🩷

I came out of a six year journey with Mom with a CPTSD diagnosis so please please take care of yourselves as caregivers.

Sending love and encouragement and support xoxox