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A myALZteam Member asked a question 💭
Northeast Florida
October 22, 2022
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Answer Summary

Members shared their experiences with Haldol for aggressive dementia behaviors, with several describing serious side effects including severe... Read more

Members shared their experiences with Haldol for aggressive dementia behaviors, with several describing serious side effects including severe sedation, shuffling, falls, drooling, diarrhea, and tardive dyskinesia that caused muscle spasms and slouching. Many community members described successfully using alternative medications like Ativan, Zoloft, Trazodone, and Aripiprazole, either as scheduled medications or on an as-needed basis, particularly for shower-time agitation or general anxiety that preceded aggression. A recurring theme was the importance of strong self-advocacy with facility medical staff, working collaboratively with behavioral psychiatrists to find the right medication balance, and recognizing that while safety must be protected, turning a loved one into a 'zombie' with outdated medications should not be the only option.

A myALZteam Member

The doctor at the facility is who you should be speaking with. You shouldn't have to cross your fingers in hopes they do what you suggest. If you have power of attorney they need to listen to you or you can call in the counsel on aging in your state and they will send in an ombudsman who has the authority to review his records and create change.

October 22, 2022
A myALZteam Member

Greg takes escitalopram, too. So do I. 😊 you might want to give a try yourself. It helps caregivers, too.

He also takes memantine. But he didn’t do well on quietapine. Never tried galanapine though.

He’s not quite into depends full time yet but wears them occasionally, when he’s got diarrhea.

Take care, Bernie. You’ve got a tough job, for sure.

October 23, 2022
A myALZteam Member

Muggsy, thanks for your input. I totally agree. Haldol is such a very old drug, with so many down sides. And I haven’t heard from anyone on this website, who’s loved one is on it regularly.

Greg’s memory care residence’s mobile LPN is only 40 years old. You’d think he’d be more open to later generation antipsychotics. He really likes prescribing haldol and at high doses. I did get him to, though reluctantly, take Greg’s Haldol dose down from 5mg 2x daily to 2.5mg 2x daily. So that’s a step in the right direction.

I mean, it was crazy. Greg went from not taking haldol at all, to immediately being on 10mg a day, every day. Granted, his aggressiveness needed to be stopped quickly but, still, that much haldol seems like over kill.

am planning to take Greg to his behavioral psychiatrist a week from now and let him write down some further adjustments, like maybe substituting Ativan for the haldol, while keeping him on Rexulti, and having haldol be as needed, rather than daily.

Trying to keep the mobile doc in the lead, since he’s the first line of duty. Trying not to usurp him. Need him, too. He comes to the facility every week. So very available.

October 23, 2022
A myALZteam Member

Nettie, you’re comment is helpful because Ativan is exactly what Greg’s behavioral psychiatrist has advised the facility’s LP substitute and back down the haldol, using it as needed, just as cer did for her husband.

October 22, 2022
A myALZteam Member

My husband does good on sertraline

October 22, 2022

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