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I Was Wondering If There Are Others Who Have This Disease In Early Stages That Would Like To Talk .. I Am 2 Years Into My Disease

I Was Wondering If There Are Others Who Have This Disease In Early Stages That Would Like To Talk .. I Am 2 Years Into My Disease

A myALZteam Member said:

Our journey is about 10 years but is declining more repidly now. He takes meds to slow the progression of he disease. We played UNO, did a lot of puzzles, counted Penny's and I would write his name and have him print it a few times but he can't do those things anymore. I turn on the baby channel for him at night, he likes the colors and the music is soothing. We are still able to find things to be grateful for. Ken, don't waste your time worrying about what might be all that will do is steal the day away from you. Focus on the things you can do, do brain exercises along with your physical exercise. Eat healthy and lots of water. Your wife will treasure every day with you. We may get overworked, overwhelmed over stressed and grumpy but we love you and give thanks that we are there to take care of you, an try to make those days better.

posted 25 days ago
A myALZteam Member said:

Similar TV issue here.
Sadly I know all the favorite programs by heart but my wife experiences them fresh each time.
I watch stuff on my Ipad.
She is happy which means I am happy.
Keeping to a routine is gold

posted 23 days ago
A myALZteam Member said:

My hubby retired with 33 years in the service. I’ve noticed that the more I leave things the same, the better for him. One thing that I have trouble getting past is the TV shows he watches over & over day in & day out…I give him complete control of our TV & just find other things to occupy my time. It’s comforting that he is in his chair, liking what he’s doing

posted 24 days ago
A myALZteam Member said:

Hi KennethMucke
My name is Curt Koethler from Regina, Saskatchewan, Canada
I have been diagnosed with Early Onset. in I started journalling all of my appointments, medication, when I had my I was diagnosed on Friday, June 18th (mothers day) I am 52 years old.When I was going through all of the at one point in time I had 3 different Neurologist, my regular one, a Geriatric one and then found one that I finally liked so am down to 1 great one now.I agree there are some excellent resources through our local Alzheimers chapter.
I had a heck of a time to find a support group because there are not that many Early Onset supports which is challenging.

I only last week was able to get into one. Bit of a funny story the support group was scheduled on the third Thursday of every month and I could not figure out what that meant so I literally couldn' get into the group. Totally my fault but was a challenge. I am now finally in a wonderful support group where I feel welcomed and supported. It can take awhile to find your way but it's definitely different. don't get discouraged and keep trying.
If you have any questions, or if you would like to chat about your experiences please let me know.

Curt Koethler

By the way you can contact me at (Email address can only be seen by the question and answer creators)

posted 25 days ago
A myALZteam Member said:

20220111 Well it seems like my hallucinations have settled in for a long winter's visit. I have had hallucinations the last four nights now. For the most part then have been uneventful. But i seem to keep reawakening a few times each night. So I am not too concerned about them. They are not violence related. They have to do with paintings on walls. So I just roll over and go back to sleep.
I slept until 10 AM this morning. Trying to make up for the time I was awake. AAlso, my dog "Recycle" was rather restless last night. He could not get close enough to me. So today I plan to be active in th4e office doing final reorganization of things so I can begin setting up my new office. I am a recent retiree that is starting to prepare for running for the Veterans of Foreign Wars District 4, Department of Kentucky Junior Vice Commander position in May 2022. Between now and May I will be campaigning throughout our Distri. We have eight different Posts in our District. So I better get moving. Have a great day. Here the temperature is 28 degrees with a windchill of 23 degrees. Still rather cool even for January. So take care of one another!.

posted 14 days ago
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