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September 17, 2019
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Answer Summary

Members connected over the difficult reality of caring for loved ones with both urinary and fecal incontinence, sharing whether they still... Read more

Members connected over the difficult reality of caring for loved ones with both urinary and fecal incontinence, sharing whether they still take them to family gatherings. Several members shared practical strategies that have helped them manage outings, including using Depends briefs, packing a change bag with wipes and supplies (like you would for a baby), timing trips around bowel movements, carrying mattress protectors for overnight stays, and following up after bathroom use to clean surfaces. A recurring theme was the emotional toll of this challenge, with some choosing to host gatherings at their own homes instead to reduce anxiety and preserve dignity, while others described the sadness and isolation that comes when family members are too uncomfortable to help or when invitations feel overwhelming.

A myALZteam Member

Yes, we are using the depends briefs. Yes, he still goes to the bathroom but occasional misses and does not get wiped after BM so if I don't catch him going and help wipe - the Depends is there. I was getting tired of cleaning out his underwear!!! So glad he has accepted it. When don't go overnight much but when we do - mattress protector. He always needs reminder to wash his hands as well.

September 18, 2019
A myALZteam Member

Sounds like my husband. I have to check the bathroom every time he uses it. Toilet seat and surrounding floors are often caked with bm smears. Reminding him doesn’t help. I’ve got a supply of Clorox wipes for these situations. Refuses to wear Depends.

September 20, 2019
A myALZteam Member

Yes. We kept doing regular things so long as Jackie was able. We carried a change bag like you would for a baby. We didn’t do overnight get stays more because of stairs being a problem. Otherwise would just have packed matress protector, sheet and bed pads too.

September 17, 2019
A myALZteam Member

My father had the same issues and it was his choice to stop attending family trips and visits to other houses. We would gather at my house so people can see him.

September 17, 2019
A myALZteam Member

Mine wears depends finally. But he pees all over the toilet so I take wipes with me too.

September 20, 2019

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