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My husband doesn’t talk much.all he does is stare sometimes in a gaze😢

June 4, 2019
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Answer Summary

Members deeply related to the experience of silence during car rides with loved ones who have dementia, with many describing their spouses or... Read more

Members deeply related to the experience of silence during car rides with loved ones who have dementia, with many describing their spouses or parents staring into space, sleeping, or offering only minimal responses despite attempts at conversation. Several members shared practical strategies that have brought moments of connection, including playing oldies music or familiar songs (noting that the music processing part of the brain is often the last to be affected), simply sitting in companionship without expectation, and reframing the silence as peaceful rather than lonely. A recurring theme was grief over the loss of conversation and companionship, balanced with acceptance that silence and stillness are part of the disease's progression, and finding comfort in small gestures like a rhythmic knee pat to music or a brief smile of recognition.

A myALZteam Member

Hi Amiee if your car has a Radio or CD player put a channel on with music they like or CD so they can Reminisce to I Used To Do it for my wife Kathleen She enjoyed it Kath Passed Away in January this Year just thought about it when I saw your Write up Frankie God Bless you x Hug

June 4, 2019
A myALZteam Member

I have that happen constantly. Trips in the car are usually in silence or Kate may comment on how green everything is but it's always that same comment... every day. At meal times I always have the radio on simply so there's some noise because there's no conversation. The other day Kate's brother and his friend dropped by and the 4 of us sat around the table. The 3 of us conversed and Kate pretty much just sat there. That's one of the things I miss the most, just being able to have conversations. As far as it being normal. It's apparently normal for our 2. I guess it's just part of not being able to form thoughts in their heads... I guess.

June 4, 2019
A myALZteam Member

Mine will respond to old music he use to know. From what I have been told the part of the brain that deals with music is the last to go. Xoxo. This is so hard.

October 26, 2019
A myALZteam Member

When we get in the car my hubby usually falls asleep for 90% of the ride, or is quiet most of the time. Then on some rides he might chat. But when he falls asleep and his head is hanging down, I keep checking on him. Thankfully we have the GPS to help navigate, as hubby would not be able help. This dread disease is tough on the patient and the caregiver. Yesterday I just broke down at the Chiropractor’s office, but got hugs from the doctor and her receptionist. Made me feel a lot better.

June 19, 2019
A myALZteam Member

Yes it is sad but also part of the illnesses.

June 7, 2019

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