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A myALZteam Member asked a question 💭
Melbourne, AU

My dads only 66. We moved out on advice from his specialist (and we were really struggling) to see if he can cope by himself. The reality is that he isn't- he's just surviving...barely. My sibling and I have made the very hard decision dad needs to go into a unit in low care so he can still have his independence and come and go as he please but he won't have to worry about anything but himself. We were told the reality will be he will be dragged kicking and screaming to it, which breaks my… read more

February 16, 2017
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Answer Summary

Members shared the heartbreaking reality of deciding when a loved one with dementia needs residential care, with many describing the guilt of... Read more

Members shared the heartbreaking reality of deciding when a loved one with dementia needs residential care, with many describing the guilt of feeling they're breaking marriage vows or promises while their own health suffers under the strain. Several members offered practical advice including contacting the person's doctor for medication adjustments, getting a behavioral reassessment before aggression escalates, introducing care slowly with emphasis on independence and benefits, and using power of attorney to manage safety concerns. A recurring theme was the tension between honoring commitments to care for loved ones and protecting one's own physical and emotional wellbeing, with members emphasizing that sometimes helping them means helping yourself first and that no one should wait until violence occurs to seek placement.

A myALZteam Member

Hi Patience
I am like you. You promise in sickness and in health but where do you go when your own health is suffering. I have had three heart attacks and six stents put in and am taking too much angina medication. There sometimes comes a time when we can't cope. It would break my heart to put him in care.

February 25, 2017
A myALZteam Member

I feel for you - my husband is only 68 and has had dementia for at least 3 years. I wish I knew what to do and I have been a disability support worker in the past. In your own personal life it is a lot harder. It's getting a lot, lot harder - just seek as much help as you can to help you get through this, as I will do.

March 27, 2017
A myALZteam Member

Back at you.

Independent minded stubborn people with dementia added are difficult to manage.
Plus young at heart and don't fit into the pitiful services if any available

Deep breath and just go with the flow.
Know there are people here who understand x

February 17, 2017
A myALZteam Member

I agree with Jan, can you move back, I would not cope to hear my husband kicking and screaming, it would break my heart forever. my situtation is different to yours, i am a wife and promised, in sickness and health. With your dad, you need to consider your life when planning for your dad, good luck xx

February 22, 2017
A myALZteam Member

My husband (early to mid stage) knows our plans (which could change), but I hope to hire a friend to come and sit with him, or have one of our two daughters sit, when I need to leave the house. Eventually will take all his keys away. So far, he doesn't want to let go of his finances, but our Oldest will be Power-of-Attorney. We have long term care insurance, but I just get tired, thinking about the future, so try to take things one day at a time. Meanwhile, we live near a fine Nursing Home, where he knows he may go eventually...we shall see. It's entirely up to each family to decide. My Father-in-Law tried to take care of his wife, way too long and the doc eventually had to tell him to put her in a home, cuz it was killing. He eventually died of a Massive Stroke, 6 years before she did - very sad/sam

February 22, 2017

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