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My son is Down Syndrome and has been diagnosed with ALZ. I was able to take care of him at home until he fell last year. After the fall he was no longer able to walk at all , feed himself or… read more
When my husband is out of sorts, I think okay, this really is happening. But sometimes (a lot here lately), I wonder could this all be a mistake? Could something else have been going on 6months ago and now it’s over? My husband has been on Aricept for about 5 or 6 months and since July 2nd on the highest dosage. Does he really need it anymore? I am so confused and I don’t want him labeled with something he doesn’t have! Has anyone else ever went through this doubt or know of a misdiagnosis being… read more
I never questioned his condition, I spent the first part of his tests with the psychologist and psychiatrist one of the questions he was asked was how many children do you have? He said two, he has… read more
I’ve got 3 generations of family with history of Alzheimers. Has anyone had genetic testing, or MRIs, for baseline? If so, are you glad you did?
Both of my parents had dementia. My father had Alzheimer's and my mother had Lewy Body dementia as did her brother. I am not sure I want to know if I will have either one.
I believe @A myALZteam Member is correct: facing mortality is very difficult. It would probably be hard to get study participants.
The reluctance to face mortality is why most people don't want… read more
My husband is in later stages of ALZ. He sits in a wheelchair and I have had to put a pillow under his arm and on his left side because he leans to much to the left that it is hurting his left rib cage. I try to lift him up so I can feed him and he gets upset and gets very stubborn like he wants to be left alone. It is hard for him to eat or drink with this. He is recovering from Aspiration Pneumonia. He has swallowing problems with fluids building up in his right lung. I know put a… read more
Hugs to you Sandra yes it's incredibly sad and heartbreaking!
I'm puzzled. Almost everyday I read something about how difficult it can be to work with health care providers due to their misunderstanding of the needs of people with dementia and their caregivers. Over the past 9 years my husband has experienced at least 5 hospitalizations, 10+ ER visits, and the route care of more than 10 medical specialists. Through all of that, I can think of only two times that this has been an issue. In one case, after gently requesting clarification there were no… read more
@A myALZteam Member, I think you are on to something - compassion, love, and kindness, plus a bit of common sense goes a long way in caring for someone with dementia. Knowledge is powerful when added… read more
I love my husband very much. But since the ALZ kicked in he thinks about sex all the time and that part of our life is gone and he wants to try and gets upset with me cause i wont give in butt there is no sence in it cause aint nothing gonna happen anyway so i get accused of having an affair. I just tell him i love him and i just want to cuddle. or sleep. I dont want to hurt his feelings or make him think he aint attractive to me. Do you know what i mean. I am just beside myself will ALL of… read more
Linda great post. Hope it helps Susie. Thinking about you
My husband takes his time to cross the streets and sometimes he stop in the middle of the road , I'm ending pushing him to the sidewalk. He gets angry and upset. Any suggestions???
I tried holding hands. Don't work. I told him let hold hands to remember when we were young not. I up to walk around my block where I don't need to worry about fast cars
Thank you that was a nice… read more
My mother becomes very cranky and argumentative after a meal and this can last for quite a while. It is getting to the stage that I am so anxious that I either can’t eat myself or I am sick after a meal. It doesn’t matter if we eat at home or out and I just don’t now how long I can handle it for 😞
I lost 40 # in the first 3 months....my stomach stays in a knot....
I've noticed Frank seems to connect well with dogs. He seems more calm and not so anxious. We lost our 9 1/2 yr old boxer dog a year ago. When my son brings over his American Bull/Pit dog or my daughter brings over her Rottweiler, Frank spends the entire time either playing with the dog and petting them.
(Phone number can only be seen by the question and answer creators) PM ET RitaMartinez Naming a child is no more difficult than naming your pet. The challenge in naming a pet is the fact that if… read more
