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I am considering reducing my husband's Memantine dosage from 10 mg twice a day to 5 mg twice a day. I think the Memantine is why he only is awake for 6 hours a day. While awake he is alert and interactive for about 90 minutes and then doses off. The excessive sleep generally seems to have coincided with starting the medication. His doctors are giving me differing opinions. Can you please share your experiences with this medication? Has anyone reduced the dosage and what was the result?

My husband has predominantly Lewy Body Dementia with Alzheimers, combined. He is nearly all the time in the delusion he is still working as an electrical engineer and I am a co-worker that he blames all his work problems on. He has gotten very aggressive at times. Almost like clockwork we go thru, "we need to leave to go to the transmitter site and do our work, I promised I would get it done and you aren't helping. And then you need to take me home, we can't stay here, we will die". There… read more

I am 52, and left my job in April to say home and care for my husband
He has 3 adult children. I have no children of my own
I'm a devoted and loving wife & partner.
My goals have been to keep M happy, safe and give him as much joy as possible.
Now, I'm struggling.... more than I ever have.
I've lost my joy. Any joy.
I am i his only caretaker, with him 24/7. I am able to leave him for an hour or so, but not much longer.
When I do leave, I worry constantly anyway.
Taking him places is getting… read more

Should I try to explain to my LO what to expect down the road? Should the doctor do this? He knows he has poor memory, but doesn’t know what progression entails. He doesn’t know what I worry about. (He doesn’t believe he can’t drive anymore. I know this isn’t uncommon. ) Should he know that he will lose ability to care for himself, and eventually die from it?

Let's say your loved one with dementia also suffers constant chronic pain from autoimmune problems with cardiac problems and aging issues...would you choose an E.G.D. (light tube down the throat all the way to the beginning of small intestine) if your loved one was suffering abdominal pain with loss of appetite and vomiting bright red blood already has received 4 units of packed red cells
Here's the other caveat: during the procedure all Do Not Resuscitate requests must be reversed until… read more

I haven’t posted in a while. I was living in FL but brought my husband up north in May to be near family. He steadily declined, eventually losing ability to walk etc. He is now completely bedbound. He is incontinent and cannot feed himself. He has lost interest in eating and even getting him to drink is a challenge. He has lost weight now. He has that occasional smile or comment that makes me remember how he was. I hate to see him this way. Some days I wish it was over and I feel so guilty for… read more

He hasn't had any problem sitting down on our raised toilet with heated bidet until recently. He is understanding less but I think he may be afraid to sit. What would be the best kind of device to try.? I get so frustrated as he then goes in his pants which usually results in another shower. Any suggestions will be appreciated! It is enough to make me think I can no longer keep him at home.