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What Advice Are You Grateful To Share With Others About Alzheimer’s?

myALZteam asked a question 💭
San Francisco, CA
December 23, 2024
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Answer Summary

Members shared deeply personal wisdom about caring for loved ones with Alzheimer's, with the overwhelming consensus being that patience,... Read more

Members shared deeply personal wisdom about caring for loved ones with Alzheimer's, with the overwhelming consensus being that patience, avoiding arguments or memory quizzes, and meeting the person where they are in each moment makes the journey more manageable for everyone. Several members described practical strategies that brought comfort, including establishing strict routines, using music from their loved one's youth, gentle touch like stroking cheeks or holding hands, redirecting rather than correcting, and leaning on hospice care and memory care facilities without guilt when needed. A recurring theme was the importance of caregiver self-care through support groups, allowing yourself to grieve repeatedly as the disease progresses, finding small joys daily, and remembering that while no one chose this path, showing up with love and patience creates precious moments of connection even as memory fades.

A myALZteam Member

For caregivers:
Don’t argue.
Don’t confront.
Don’t reason.
Don’t take it personally.

December 23, 2024
A myALZteam Member

Wow! I find this an interesting question. (What advice am I grateful to share) I would have to say what has been said before and that is (Patience). With many things that a caregiver needs to deal with, Patience is a key to each and everything a caregiver needs to deal with. I care for my wife of almost 52 years, it has taken me some time to realize that I am no longer doing half, I'm doing all or if I don't do it all I must see that what I don't do that I have someone to do it for me. Sometimes when I go to fix some lunch or a snack I feel like I just want to punch something but I need to think about (Patience). Even when I get away by myself I need to think about (Patience) again to realize that I have some needed time for me. I for one get so many things running thru my mind and I find that I need time to be Patient and let my mind calm down. I try to do my best.

December 23, 2024
A myALZteam Member

This question is worded oddly to me, so I'll answer what I think it's asking: I'm grateful when people tell me I'm doing well. I'm grateful when people give me advice that is concrete and not things like: Have hope! Don't give up! Things will get better! I'm grateful for people that are patient with me.

December 23, 2024
A myALZteam Member

Remember that your loved one did not choose to have dementia, and neither did you.

December 23, 2024
A myALZteam Member

My husband has dementia. Now living in a six bed board and care. The thing I grappled with was figuring out who I am. I finally had to admit I’m not a caregiver. I am a facilitator. Once I figured that out picking up the phone and finding people who are qualified to take care of his physical needs became an answer. .
He looks great now under their care. He’s walking, smiling, playing dominoes, eating extremely well and when I visit he’s happy to see me, and we’ve begun our new life. I live with my son and my husband does not ask for me when I am gone, which means he is not worried about anything.

February 22, 2025

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