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A myALZteam Member asked a question 💭
San Marcos, CA
August 11, 2024
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Answer Summary

Members opened up about whether they feel embarrassed telling others their loved one has Alzheimer's, with most expressing that they view it... Read more

Members opened up about whether they feel embarrassed telling others their loved one has Alzheimer's, with most expressing that they view it simply as a disease like any other and feel no shame in being open about the diagnosis. Several members shared that honesty has brought them love and support from their communities, though some noted feeling profound sadness rather than embarrassment when discussing it, while one member described struggling with judgment from others who question why she stays with her boyfriend. A recurring theme was the importance of self-care and seeking medical help for challenging symptoms like agitation and depression, with members encouraging each other to advocate for better treatment and to remember that reaching out for support is essential.

A myALZteam Member

no it is a disease

August 18, 2024
A myALZteam Member

I think we have both been pretty open with it. I wanted people know why I retired early. I didn't want people to think I was pushed out. My wife works for a hospital so there was no reason for her to sugar coat it either. She has been open about it also.

August 13, 2024
A myALZteam Member

@A myALZteam Member: Alzheimer's is a disease, and I think if you remind yourself of that, it will be much easier. If he had heart disease, or diabetes, or some other disease, you probably wouldn't be embarrassed. The brain is just another organ in our bodies, and this particular disease just happens to attack the brain -- and if he had a brain tumor, would you be embarrassed? If you think it through, you'll probably do much better and will stop feeling embarrassed. It's an incredibly sad disease.

August 12, 2024
A myALZteam Member

I have never felt embarrassed when I am honest in situations that lend itself to that. Just sad as I know it means this is all real and will only worsen. I think peoples love and support have made me feel that we're not alone. Nothing to be ashamed of, no ones fault, and so many are effected by this devastating disease that we all need to be championing better care, more research and more awareness and compassion,

August 20, 2024
A myALZteam Member

No. Very open about it from the get go. He has never indicated any uncomfortably. My mother was ashamed and never wanted it mentioned. She believed all mental health disorders or diseases were shameful somehow. I never wanted that to be my outlook.

August 19, 2024

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