I’m so sorry you’re having to deal with this. As hard as it is, I wouldn’t put my LO through any procedures, as we wouldn’t treat anything that may be found, per her wishes, that she put in writing when she was first diagnosed. I don’t want to prolong her suffering and would just provide comfort care. Have you thought of bringing in hospice? They can advise, support you and help you make decisions.

@A myALZteam Member, I am so very sorry to hear you lost your mom. Though it was her time, a daughter can never be truly ready for that inevitability. Wishing you peace and comfort. You were there for her and did the best for her. Be kind to yourself.

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A myALZte...

You guys are so strong and so compassionate. My heart goes out to you all. I watched my Mom and Dad go through so much before losing them. It hurt so much watching their bodies and minds get weaker with each day. My Mom stopped eating and was in alot of pain and it left me feeling so helpless. You are all in my heart and in my prayers
I pray God gives you the comfort and strength that it takes to get through this awful diseases journey. Have a blessed day.

Hi,
My husband is on hospice care and has many other issues besides Alz and Parkinsons he is progressing into stage 7 and has lost and is losing weight drinks a lot of suppliments and only eats less than half his meals. He gets comfort care pain management. So I would not go with an EDG as I know from earlier conversations he would not want to be put through that when its not going to change his outcome. He has a DNR order also. I just want him to be made as comfortable as possible. So sorry your going through this. 🌹😊

It’s a very hard decision. This is just a personal opinion. I think there is more to life than the number of days you live on earth. We told our sons that if our minds were gone, just let the body go too. I will not put Bob through any procedures unless absolutely necessary. My brother had several heart surgeries, his esophagus scraped several times (very painful) He had to be tube fed after his last cardiac surgery for several months. He also had some vascular dementia. he started having black tarry stools and then was vomiting blood and also got blood transfusions. The Dr thought perhaps the esophageal cancer was back. He had told his family he didn’t want anything more done and also told the Dr the same. He was 87 and said he had lived a good life and was ready for heaven now. He went home on hospice and died a month later. It is your decision, and I would support you in whatever decision you make. I’ll keep you in my prayers for God to guide you and support you.