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My husband has predominantly Lewy Body Dementia with Alzheimers, combined. He is nearly all the time in the delusion he is still working as an electrical engineer and I am a co-worker that he blames all his work problems on. He has gotten very aggressive at times. Almost like clockwork we go thru, "we need to leave to go to the transmitter site and do our work, I promised I would get it done and you aren't helping. And then you need to take me home, we can't stay here, we will die". There… read more
@A myALZteam Member Sorry I can't help you, because I don't know any effective ways of preventing or dealing with the take me home issue. Happens every week more or less, sometimes days on end. Perhaps something to do with sundowning but I am not convinced. My take on it is unease with the condition they're in, but incapable to say that in a polite way. At least your husband is not overly polite. I have to read up on your storiy and posts, had not realized Howie has LBD, our neurologist suspected that with my wife, but was not very convincing. This week we are going to see different one.
@A myALZteam Member There are meds that can help with the hallucinations. My husband was on one medication but had to switch to a different one. He used to get very anxious over things that he had to do at work and I was supposed to help him. After his Dr changed his meds, he doesn’t sun down until 4-5 pm and it isn’t as bad as it was. I can usually work around it although once in awhile we have to drive to town for a little bit and then he is satisfied. I think he has forgotten what it was he had to “deliver” or do. And he is satisfied.
@A myALZteam Member: My hubby is able to "showtime" too. Most can, at least in early stages.
For those who don't know what we're talking about, I'm including a link that I saved because it helped me to understand what was going on, when the primary care doctor thought my hubby was fine, even though I was pulling my hair out!
https://coping.today/what-does-showtime-mean/
@A myALZteam Member: I do worry about your safety. Please be very careful.
https://www.lbda.org/caregiving-publications/ has several behavioral care briefs for LBD that may help. Found this organization helpful as I try to better understand my husband’s LBD.
Yes, please talk to your doctor. Perhaps there is another medication to help these symptoms. Especially the aggression. And install a child safety lock on your doors. Easy to find on Amazon. As my husbands neurologist said to me, “don’t be a hero”, “Take care of yourself”.
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