Faustina2, give yourself some grace. You are doing great job considering the circumstances. I change my mom in the morning after I take care of my needs. In other words I have a morning routine. God first, morning meditation and devotion, then my personal hygiene. Maybe even some somatic exercises sometimes. It all depends on my schedule for that particular day. Then I change her, fix her breakfast, I give her lunch around 1, I usually don't change her then, I wait until just before or after dinner, unless I feel the need. That seems to work well for me. Sadly, they don't understand anymore because of the disease. Remind yourself that it is not them, it is the disease. Anyway, figure a routine that works best for you. Make sure you keep her bottom coated with zinc paste and powder to avoid pressure sores, I put a pillow under her shoulders, legs, and foot pillows on her feet to keep her heels from getting pressure sores. Pressure sores can be extremely difficult to heal. If you can get a air mattress from her medical assistance ask them and keep asking until you get it. You got this, it a learning process.🙏❤️XOXO 🤗 😘

Great tips and information!

Our schedule when I was working was every 2 hours and as needed in between. Use a good barrier cream. Something on the line of desiten. The zinc oxide in it forms a barrier between the skin and poop or urine. There is often some white color remaining after clean up, but you don’t need to get it all off as long as the poop/pee is gone. That may save her skin since it is painful for her to turn for changes. (Regarding lifts! They still have to be turned to get them on/off the lift sheet. And for safety you should have 2 people to move and position the person unless you have a ceiling lift)

Nicolee,
Thank you for your post. I admire your strong commitment to prayer even in the face of such caregiving responsibilities. Thank you for your input too.
I am trying to lighten up a bit about the frequency of her diaper changes.
Mamma wakes up really early and is almost always waiting on me in the mornings. Usually, I get up about 5a.m. and try to first wash my face, comb my hair, and quickly dress. Then I head straight on in to her room to get started.
Some days we are up by 4a.m., but of course she never exits her bed, as she cannot, but I consider her as being 'up' once she is completely awake.
The other morning she called me in at 03:00 because she felt it was a bit difficult for her to breathe and her chest was hurting. She has heart problems, etc...so I gave her some medicine and stayed next to her for a while until it calmed, then kept on with my day as usual without returning to my bed. Sometimes it just doesn't make sense for me to bother with lying back down when I always have more than I can do.
I do need more rest at night, but as long as God in His Goodness preserves me I am blest to have the privelage.
I still hope that mamma and I can remain together for many years and may my body be renewed each day in Christ's Providential Love.