Hi Wanda. From my caring of Alzheimer’s, dementia, Parkinson’s, blindness, patients
My answer to your: question
Goes like this : they seem to dislike more and more foods that they used to love. It… read more
I am considering reducing my husband's Memantine dosage from 10 mg twice a day to 5 mg twice a day. I think the Memantine is why he only is awake for 6 hours a day. While awake he is alert and interactive for about 90 minutes and then doses off. The excessive sleep generally seems to have coincided with starting the medication. His doctors are giving me differing opinions. Can you please share your experiences with this medication? Has anyone reduced the dosage and what was the result?
Memantine
My hubby started on Memantine for about 3 1/2 yrs. A year ago she upped it to 28 mg a day. I believe that is the highest dosage. He has not had problem with it at all. He takes it in the… read more
My husband has predominantly Lewy Body Dementia with Alzheimers, combined. He is nearly all the time in the delusion he is still working as an electrical engineer and I am a co-worker that he blames all his work problems on. He has gotten very aggressive at times. Almost like clockwork we go thru, "we need to leave to go to the transmitter site and do our work, I promised I would get it done and you aren't helping. And then you need to take me home, we can't stay here, we will die". There… read more
KOI Dragon Blend , available on line, was one product we used. My husband used 1/4 of one gummy. This is a synthetic form of THC , one DOES NOT need a medical marijuana card to purchase this product… read more
Should I try to explain to my LO what to expect down the road? Should the doctor do this? He knows he has poor memory, but doesn’t know what progression entails. He doesn’t know what I worry about. (He doesn’t believe he can’t drive anymore. I know this isn’t uncommon. ) Should he know that he will lose ability to care for himself, and eventually die from it?
I don't have an answer, but thanks for asking the question. I appreciate the experienced advice of others!
Let's say your loved one with dementia also suffers constant chronic pain from autoimmune problems with cardiac problems and aging issues...would you choose an E.G.D. (light tube down the throat all the way to the beginning of small intestine) if your loved one was suffering abdominal pain with loss of appetite and vomiting bright red blood already has received 4 units of packed red cells
Here's the other caveat: during the procedure all Do Not Resuscitate requests must be reversed until… read more
@A myALZteam Member, I am so very sorry to hear you lost your mom. Though it was her time, a daughter can never be truly ready for that inevitability. Wishing you peace and comfort. You were there for… read more
Some days are harder than others for sure. It's like putting your finger in a light socket: every thing you do is wrong! I'm trying so hard to stay calm no matter what. I know Hubs is frustrated too… read more
I haven’t posted in a while. I was living in FL but brought my husband up north in May to be near family. He steadily declined, eventually losing ability to walk etc. He is now completely bedbound. He is incontinent and cannot feed himself. He has lost interest in eating and even getting him to drink is a challenge. He has lost weight now. He has that occasional smile or comment that makes me remember how he was. I hate to see him this way. Some days I wish it was over and I feel so guilty for… read more
We had hospice care for my husband for the last 6 1/2 weeks of his life. He had an episode of a-fib, and went downhill rapidly. Two weeks before he died, he started falling, so we put the side rails… read more
He hasn't had any problem sitting down on our raised toilet with heated bidet until recently. He is understanding less but I think he may be afraid to sit. What would be the best kind of device to try.? I get so frustrated as he then goes in his pants which usually results in another shower. Any suggestions will be appreciated! It is enough to make me think I can no longer keep him at home.
This happened this morning with the caregiver.....he wouldn't sit down and poop came out outside the toilet! I hope we get this figured out soon and it is not the new reality.
How do you cope with "Sun-downers". My husband wants to go "home" everynight. He even packs things he is taking with him. Every trick I know does nothing to help.
My wife does the same thing. I found talking to her, walking around and showing her pictures of us in different parts of the house helps.
Mom still can do her personal care for the most part. She does not use the kitchen anymore, nor does she drive or go anyplace unattended. Her spouse is taking care of her for the most part with help from my sister and myself 3 days a week. Mom is getting very frustrated because we can't always figure out what she is trying to say. She also thinks we are always talking about her or that we are plotting against her. She also believes her husband is fooling around on her. One time said him and… read more
Dawn, there's a book that helped me when my mother had Alzheimer's and needed to move to assisted living. The Eldercare Handbook: Difficult Choices, Compassionate Solutions was a great resource when… read more