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A myALZteam Member asked a question 💭
Menifee, CA
April 18, 2023
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Answer Summary

Members shared vastly different experiences regarding memory care wait times, with some reporting waits of two to three years (especially for... Read more

Members shared vastly different experiences regarding memory care wait times, with some reporting waits of two to three years (especially for Medicaid beds), while others found immediate or short-term availability, particularly in larger cities or newer facilities that prioritize private pay residents. Several members emphasized the importance of touring facilities early, getting on waiting lists even if placement isn't imminent, and exploring options like VA homes for veterans, Board and Care homes as more affordable alternatives, and leveraging long-term care insurance despite its limitations and elimination periods. A recurring theme was the financial strain and systemic gaps many families face, including veterans with young-onset dementia who fall through benefit age requirements, the unpredictability of care needs escalating quickly, and the necessity of persistent advocacy and advance planning to secure appropriate placement when the time comes.

A myALZteam Member

CER
VA help him for prescriptions and maybe Depends (i am asking now abd i think they will help him for that) but his disability rate is not good enough for nursing home or helping caregivers) they have AID AND ATTENDANCE which they help some (not all) to pay nursing home , but it is for 65yrs or older, he is only 62 yrs old soon tobe 63yrs old. Those young onset dementia veterans who didn’t claim or didn’t get disability rating high enough are totally forgotten . It is wrong .
I really think it is not fair at all.
Our voice need to be heard to government and VA. Young onset is maybe only 10% or less but we are suffering because many of us forced to quit working and take care of spouce or some of the caregivers (usually they are not retirement age yet , and can not even collect social security either or insurance problems) has to keep working caring their loved ones..
I will write letter to them and government too.. I believe my husband served in Navy for 23yrs , deserve yo qualify for AID AND ATTENDANCE .
I am praying God will do his plan .. 🙏

April 20, 2023
A myALZteam Member

Miko, I ran into issues with varying benefits between my dad and uncle. I was told if they were in a war, they have more benefits. My dad didn’t serve during a war so his benefits were limited.
Sending prayers your way as you are having to fight the disease and for your husband. I’m sorry! 💜🙏🏻

April 29, 2023
A myALZteam Member

I am so sorry to hear what you are going through. It's bad enough that you are dealing with the dementia so young . You have to fight for him and hopefully get someone to help you,

April 20, 2023
A myALZteam Member

It depends on the specific MC facility. If you find one you like, or if you check into a VA home, ask how long of a waiting list they have. You can put your husband on a waiting list anytime. If his name comes up and you don’t want it yet, they will put you at the bottom of the list if you want to do that.

April 18, 2023
A myALZteam Member

It depends on openings. My husband was placed within a week as they had empty rooms. But, I was advised that it is good to get your name on the list of your choice. They contact you when a room is available and if you aren't ready, they move on down the list and put you at the bottom again.

March 6, 2024

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