Prayers to you…

Hello @A myALZteam Member,
Thank you for sharing your deep gut wrenching despair...this is a safe and uplifting site to dump! 💔 I am about 4 years into care partnering, and I will not sugar coat and say it gets easier. But I will encourage you to reach out to as many resources as you can! Family, friends, church,, Alzheimer’s groups ( we have found connection through our Center 50+ Alzheimer’s Org.), and many helpful books. Yes, family and friends can either disappear or disappoint, but hang tightly to the faithful few! ...And one sustaining anchor for me is knowing, without a doubt, my guy would do the same for me. 💜 Please hang in there, Joanie.

Mentioned Users

A myALZte...

I must say life is never boring with this disease. I never know what mood H will be in or when I say something that sets him off. His personality is changing for the worse as we go along on this journey. I find myself walking out of the room more. I also read more so no to talk. He does not want to have conversations about anything. Let's pray for all caretakers as well as those who have a disease they did not ask for. Find Joy!!!

My husband had Post Cortical Atrophy. He awoke with terminal agitation, was medicated by Hospice, and died about 60 hours later. Unbelievably fast decline… up to that point, we still were taking walks! NOONE KNOWS WHAT OR WHEN . Please get help for YOU. He died Sept. 3. I’m still in shock but so thankful for him and his peace. I had signed up with Hospice thinking I’d need them at some point. I’m SO GLAD I did.

I hear you.hangin there