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A myALZteam Member asked a question 💭
ft worth, TX

I no everybody/ side effects are different but was curious have any of your love ones take this medicine and have any side effects are have it been effective?.........Just wanted to no any side effects of anybody taking this medicine are what medication have been effective for memory are just daily functions

December 2, 2022
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Answer Summary

Members shared mixed experiences with donepezil for Alzheimer's and dementia, with several noting it caused diarrhea or loose stools, while... Read more

Members shared mixed experiences with donepezil for Alzheimer's and dementia, with several noting it caused diarrhea or loose stools, while others reported no side effects but uncertainty about whether the medication was truly helping. Many members described loved ones taking donepezil alongside memantine, with some feeling it improved daily functioning enough to continue despite unclear benefits, while others stopped the medication after seeing no change in memory or behavior. A recurring theme was the difficulty of knowing if these medications genuinely slow decline or simply maintain current functioning, balanced against the reality that discontinuing them might risk a faster progression.

A myALZteam Member

There is no real way to tell as the disorder affects each person differently. My wife is on Memantine and Donepezil. She can go for weeks with no discernible change, then get worse suddenly. These drugs are rated based on a large number of people over a fairly long time. I have no way to know if my wife would be better or worse without the drugs but since she doesn't seem to suffer any side effects, she will remain on them just in case they do help.

May 12, 2023
A myALZteam Member

My husband was on both, but after awhile stopped giving it to him because it was not helping at all anymore.
Has anyone tried the infusion drug? Adunmanb??? Spelling???? I know there is another one that's supposed to be approved sometime in January. He hasn't been back to the neurologist in awhile. His primary care suggested he go back for a follow up. Will schedule after the holidays.

December 14, 2022
A myALZteam Member

My husband was on it for awhile. Helped a little at the beginning but then no change at all. So we decided to take him off the meds. Has anyone tried any of the new infuson drugs?

May 13, 2023
A myALZteam Member

My sister is currently taking Donepezil, she is doing much better, but not sure if it’s the Doneepezil or not!!

December 3, 2022
A myALZteam Member

My husband started taking this in last few months. No side effects. Not sure if it helps. He is taking another med with this one from a research study. Slight improvement in short term memory.

December 3, 2022

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