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A myALZteam Member asked a question 💭
Surprise, AZ

My husband of 58 1/2 years in memory care and I am so sad and weepy which I am never, but this has threw me a big curve. I know he is safe and not about to wander out of house , I know he is being taken off but I am heartbroken. He actually said When I-was talking , who’s calling I said Annetta , we visited he asked again I said Annetta , he said “My, Annetta , the one I am married too,that they say we are divorced? ” Broke my heart , I assured him we weren’t. I put him in as he is 85… read more

December 7, 2021 (edited)
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Answer Summary

Members rallied around someone struggling with deep guilt and heartbreak after placing her husband of 58 years in memory care, with the... Read more

Members rallied around someone struggling with deep guilt and heartbreak after placing her husband of 58 years in memory care, with the overwhelming consensus being that she made the most loving and necessary choice to keep him safe. Several members shared practical wisdom from their own journeys, including advice from a caregiver facilitator who emphasized that placement is an act of love rather than abandonment, the importance of releasing guilt and caring for oneself without requiring daily visits, and the comfort of leaning on faith and community during profound loss. A recurring theme was the shared loneliness and grief of watching a spouse slip away to dementia, met with fierce encouragement that no one can care like a spouse does, but safety and self-preservation must come first.

A myALZteam Member

I went to a new caregiver group on Friday and the facilitator was so good, one thing he said was to “ just remember it was the most loving thing I could do for him to keep him safe, and now he is and being taken care of “. And to give up the guilt that there is no reason to think that way so that is my mantra this week.,, my husband although his sister a year younger was diagnosed before him ,he has never thought he had it, yesterday when I talked to him he said when we were talking about him getting snow and me cool here, “ where are you located now?” Later he said I am having a little problem remembering he has never said that. Our oldest son and I are flying in for Christmas. One thing the facilitator said, you don’t have to visit every day ,or call every day ,in their brain they don’t remember and if I makes you feel worse do what is good for you.

December 13, 2021
A myALZteam Member

Hey Nettie. Be kind to yourself. You did what was best. I have Alzhemiers as you know and when I get to the point where its unsafe for me or my daughter and I need to be in a more structured place, I want her to put me there. I'm sure if your husband's brain was still intake, he would tell you the same. We don't want our love ones to suffer. We understand. Hugs to you and you did the right thing.

December 12, 2021
A myALZteam Member

No no no. You young lady should never feel guilty. You are a little angel. You’ve done your absolute best for your husband . I love and admire The way you looked After your Husband. You’ve done all you can dear lady You are beautiful person. But there’s a time. To stop giving. You’ve done you’re Upmost. Time for you to have a rest young lady. You are a beautiful soul. Xxxxx

December 7, 2021
A myALZteam Member

You are in my prayers for comfort. I have not had to place Fred anywhere full time. But, he did have his first day at Adult Day Care today. It was like taking my children to Day Care the first time. I was apprehensive about how he would do even though he was of a mind that could make the decision that this was a place he wanted to go when we visited a few months ago. They called me from the Center and gave me an update which helped. He came home at 3:45 on one of their buses. He asked me how had I been during the days he was gone. I try not to think about what is to come beyond this. I honestly can't imagine your sense of loneliness and loss. I hope those of us in this community will be able to bring you some solace through our connections.

December 7, 2021
A myALZteam Member

I am so sorry. Guilt seems to be the master of this illness. And we don't have any answers or timeline. Planning goes out the window everyday. I have not had to cross that bridge yet, but know it will come the day I realize I cannot do what needs to be done for him. It is agonizing, but you are doing what is best for him.

December 7, 2021

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