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A myALZteam Member asked a question 💭
Buena Vista, GA

Husband has night terrors six out of seven nights every week. He was diagnosed with Alzheimer’s April 1 but night terrors have been going on a few years before but just getting more frequent and worse. He sees people or things during an episode.

June 13, 2021
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Answer Summary

Members confirmed that night terrors and vivid dreams are common in Alzheimer's and other dementias, particularly in those with REM sleep... Read more

Members confirmed that night terrors and vivid dreams are common in Alzheimer's and other dementias, particularly in those with REM sleep behavior disorder or Lewy body dementia tendencies, and that sundowning can worsen nighttime symptoms. Several members shared practical solutions that brought relief, including anti-psychotic medications like olanzapine, melatonin (15 mg), clonazepam, and surprisingly, the muscle relaxant Flexeril, which one member found eliminated both muscle spasms and night terrors after multiple trials. A recurring theme was the importance of working closely with a neurologist who values caregiver input, keeping detailed notes on medications and behaviors, and weighing side effects against the unsustainable toll that nightly terrors take on both the person with dementia and their caregiver.

A myALZteam Member

My wife went through it and it was terrible. Back when she could somewhat express herself she described some pretty horrible things. Our neurologist at the time prescribed an anti psychotic drug olanzapine. It helped a great deal. I realize these things are hit or miss but it gave both of us our sleep back.
Sometimes the side effect warning on the medication looks pretty grim. In our case we had to weigh the options. The complete horror show she went through every evening was unsustainable for both of us.
We survived that phase and are on a pretty pleasant plateau right now.
It’s trial and error, we had a few meds that she didn’t respond well to. I kept notes on what/when she took and jotted down her moods/agitation etc. The neurologist worked well with us and guided us through that period fairly well. She also made the determination that the two dementia drugs were no longer beneficial and ended them.
There is an answer out there it’s just having a good neurologist to guide you to it, and will value the input of the caregiver.

June 13, 2021 (edited)
A myALZteam Member

They say, seniors with Alzheimer's and other types of dementia frequently experience increased anxiety and confusion in the evening. These belts may even include hallucinations. It is known ask Sun Downing can even affect the sleep cycle and lead to night time night terrors.🙏

June 13, 2021
A myALZteam Member

Hi Diane70
My husband is the same. Always talking to someone. Also at night he sings, whistles, laughs and pounds the mattress. Lasts a few hours some nights. I now have to sleep in another bedroom and play white noise so I can get some rest.

June 22, 2021
A myALZteam Member

Yes, people with Alz can have night terrors. They Amy also act them out and may strike their spouse in heir sleep. My husband used to have horrible night terrors. Fortunately he did act out, other than if he was running his feet would be moving up and down and he would move his shoulders if he was hitting someone but never did a full swing. A friend of mine couldn’t sleep with her husband because he would hit her when he was acting out a night terror. He had these before starting on Aricept, but it is always good to check with your physician on adverse reactions to meds. We had an odd thing happen. He had muscle spasms in his nec and his PCP started him on Flexeril, a muscle relaxant, for 2 weeks. Muscle spasms went away and so did the night terrors. So he was given another 2 weeks with the same results. When the med was done the night terrors came back and also the muscle spasms in his neck. I told the Dr that I thought the muscle spasms were from being so tense during the night terrors which could last up to 3 hours at night, so he gave him a script for Flexeril every night for muscle spasms. I agin stopped it after 2 weeks and, yep night terrors returned. I told his neurologist about this and he was very interested. He said that because I had stopped it 3 times and night terrors returned each time, it was evident that the med was working. I have not heard of anyone else having this happen. I wish his neurologist or another Mayo neurologist would do a study on it to see if it would help anyone else or if my husband is just a strange bird! The med has not been approved for night terrors, so doubt a Dr. would use if “off label”. My husband is getting it for “muscle spasms” but both his PCP and neurologist know it more for the night terrors. I’m enjoying getting sleep also.

June 13, 2021
A myALZteam Member

My husband had nightmares while he was on Aricept. Since your husband has been experiencing it for a few years, then that can’t be the case. The only reason I mentioned Aricept is because his neurologist said that med does cause nightmares and perhaps it would be wise to read up on the reaction to medications before he takes them.

June 13, 2021

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