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A myALZteam Member asked a question 💭
San Diego, CA

My husband apparently doesn’t present as typical early onset, so neurologist has ordered a spinal tap? Has anyone experienced one and what does it reveal?

December 16, 2020
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A myALZteam Member

They did not give Jay a spinal tap. Has he seen a neuropsychologist for testing? This is what they had Jay do, (he did so poorly they couldn't even finish a lot of the testing), but were able to determine his diagnosis of Primary Progressive Aphasia (not stroke related).

December 16, 2020
A myALZteam Member

Hi Dianne, my husband has Aphasia and has declined considerably. I looked up in books spinal tap and it said it can detect infection, even Lyme disease which I hear can be sometimes difficult to detect.

December 18, 2020
A myALZteam Member

Sserfass, what kind of information are they giving you? It's a rather rare form of dementia and there isn't much information out there on it. I have tried to find an online support group for this specific diagnosis, but so far, I haven't found anything.

December 17, 2020
A myALZteam Member

Diane that is what they diagnosed my husband with Primary,Progressive Aphasia as well!!!

December 16, 2020
A myALZteam Member

They did not give me a spinal tap to diagnosed my early onset Alzheimer i wonder why

December 16, 2020

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