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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 19, 2019
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Answer Summary

Members explored whether sundowning can manifest as sadness alone, with one member sharing that their consultant confirmed mood changes like... Read more

Members explored whether sundowning can manifest as sadness alone, with one member sharing that their consultant confirmed mood changes like deep sadness in the evening can indeed be sundowning, even in early stages without hallucinations or agitation. Another member clarified that sundowning is typically characterized by anxious, agitated behavior and suggested the evening sadness might instead be Seasonal Affective Disorder, which is linked to reduced daylight and can be helped with light therapy, Vitamin D, and antidepressants. The conversation also touched on the profound guilt and emotional weight that caregivers carry, with one member sharing a deeply personal story of regret over a moment of frustration just days before their husband's passing, met with compassionate reassurance from others in the community.

A myALZteam Member

Sundowning is anxious agitated behaviour often with delusions and hallucinations and worsened by dim/dark light....sometimes also has verbal or even physical aggression.actions.

December 19, 2019
A myALZteam Member

TALKING ABOUT GUILT... My ALZ husband died Thanksgiving Day and I'm eat up with guilt even today... I love my husband so much...the last six months it was like having a grown man as a baby... just a few days before he died he got up and i helped him dress and I brushed his teeth (now don't get me wrong we had days where he would not let me brush his teeth but this day he was very docile and sweet) I lfixed him his favorite breakfast a simple three egg omelet with lots of cheese and milk and two pieces of toast with butter and lots of jelly i went to the fridge to get him something to drink when I got back to the table he was grinding his toast, jelly side down, and just like that I went off on him.... I went to get paper towels to clean up the mess he poured his water in his plate everything was so soggy he couldn't eat it... So I'm just fussing... I got him in to his place in the living... He had started falling due to his COPD and it was just a few days after that that he was completely bed ridden after another fall and never regained consciousness...
So I have that guilt plus a lot of other times I live with. I'm really feeling down on this first Christmas Eve without my Mama and my husband... I remember last Christmas Eve we went to the candle light at our church and when I wasn't looking he got a candle snd refused to put it back it got lit and i spent the rest of the service watching him and that candle i didn't want him to set the church on fire LOL

December 24, 2019
A myALZteam Member

Hi Sue2......I'm hoplng not to be rude but your consultant's advice is very wrong....sundowning is psychosis not depression but there is a form of depression (Seasonal Affective Disorder) that very much has a connection to daylight and seasons. SAD mostly occurs from Oct thru March (especially in northerly states/provinces/countries) and sometimes is referred to as February Blues....there is lots of info online. Along with antidepressants and light therapy (special ones for SAD) Vitamin D can also help along with getting as much bright lighting indoors and sunshine as possible. If you google SAD and dementia there is also info.

December 20, 2019 (edited)
A myALZteam Member

I only have sadness and not of the other symptoms with sundowning but I talked to Alz consultant and was told it still is sundowning because it happening in evening when it's dark. I didnt know that

December 20, 2019
A myALZteam Member

So true

December 20, 2019

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