Sometimes I feel I'm not the right person to be taking care of my husband, he doesn't listen to my suggestions about keeping himself active, he tries at times to do better, but he is so tired, no energy or ambition, takes sometimes two long naps a day. I dont know if it's depression or if he has other health issues
He sees his PCP and cardio
Dr. often. His bloodwork, all things were normal...He's lost about 25 lbs.in 3 yrs. He eats well, but doesn't gain a lb. His voice is becoming… read more
Karen, Linda is right. My husband falls asleep frequently. He too prefers to be alone. My husband has the tremors etc. Diagnosed with Parkinson like symptoms. Remember you are doing your best. Also remember that you need to care for yourself. He may not want to go to a home but the time may come that you can not care for him alone or at all. I constantly feel inadequate. But I am the one ignored , the one he lashes out at, the one telling the doctors the actual situation, and the one who is doing okay while he is declining.
Be honest with the doctors and care for you.
Hubby's lack of energy, weight loss and frequent naps are common in mild to moderate Alz. The slow shuffle, tremors and postural changes are likely Parkinsonian symptoms....my hubby has these and it is because Alz and Parkinsons Syndrome brain cell damage occur in same area.. Voice changes may be because throat muscles are weakening so it is vital to watch for swallowing issues to avoid aspiration (from food/fluids) pneumonia. I hope this info is helpful Karen.....hugs
In my experience with 3 siblings going through it, it does sound like natural disease progression. The first stages last much longer than the end stages so there comes a point where it seems to go really fast. Also, one brother and 2 sisters diagnosed with the same disease and they each walked the path in very different ways.
I’ve had my husband to a couple of neurologist, . Husband has tremors, broke his back because of osteoporosis, uses a cane to walk.
The first neurologist said he didn’t have Parkinson, just depressed.
I found another neurologist and he said no Parkinson also...went back for follow up and told the neurologist of his behavior and out of character moods. Ordered a 4 hour test evaluation, CT scan, MRI, labs and now has been diagnosed with Frontotemporal Dementia.
All of these symptoms have been going on for 7 years and no diagnosis till recently. The social worker advised me to get on this sight and I could hardly believe what I was going through, you all have been also...so sad
This describes my husband exactly. I don’t have any advice really. For the most part I just let him be, I don’t try to get him to do anything, just go with what ever he wants in the moment. I actually like his naps, it gives me time to do other things I need to do. I understand you are worried that his inactivity will make him weaker, but it is going to happen anyway, it is a progression of the illness.