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Soooo...why Is It So Hard...?

A myALZteam Member asked a question đź’­

Why is it so hard to be patient? I know it's not their fault. I know it is the disease. But why is it so hard to answer the same question over and over again? Why is it so hard to to listen even when they aren't making sense? Why is it so hard to not expect more from them? It's been more than a year. Why am I not better at this?

I don't expect an answer. Just sharing what's running through my head before it comes out as tears. Love and hugs to all of you going through this with your… read more

October 19, 2019
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Answer Summary

Members responded with deep empathy to someone struggling with caregiver burnout, validating that frustration and anger are natural stages of... Read more

Members responded with deep empathy to someone struggling with caregiver burnout, validating that frustration and anger are natural stages of grief when watching a loved one disappear to Alzheimer's. Several members shared that the repetition feels so painful because it's a constant reminder the disease is real and progressing, with many noting the unique challenge that unlike parenting a child, there's no growth or improvement to celebrate, only decline. A recurring theme was the importance of self-compassion, with caregivers encouraging each other to stop expecting perfection, take things one day at a time, and recognize that loving someone through this devastating disease is one of the hardest things a person can do.

A myALZteam Member

Hello DaughterAlz,
Try not to beat up on yourself. You are probably doing one of the hardest thing a person has to do, and that's watch your love one disappear under this cloak of Alzheimer. Let's face it, it is sometimes overwhelmingly sad to watch them lose themselves. Maybe some days you can handle it a little better than others...if you are tired, it's always harder. I think in your heart you know that every time he repeats or does something odd, its a reminder that this is REALand you are losing him. Maybe you are angry and sad at the same time, but whatever, you are doing the best you can. Take care of yourself.🙏

October 19, 2019
A myALZteam Member

This is so true Karen. Even though they are still alive, we are grieving...so many emotions, grief, fear, anger, sadness and more. So far D is good, and most I am dealing with is his not knowing hiw to do things and his forgetfulness,...he has gone through a nasty stage, but fir the past 5 months has been pleasant but memory deteriorating. I have let the anger and fear go, replacing it with love and compassion, and a load was lifted off my shoulders. I also take things one day at a time.

October 22, 2019
A myALZteam Member

I have the same feelings and I feel so bad after I lose my patience but knowing my husband would always be there for me keeps me going.

November 5, 2019
A myALZteam Member

You are probably in the anger stage of grief. No feeling is wrong, it just is.....

October 19, 2019
A myALZteam Member

We all face the same questions. I believe it is because we love that person unconditionally! That's all that matters anyway!

October 19, 2019

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