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A myALZteam Member asked a question 💭
Toronto, ON

My husband is so content that I can’t imagine him ever being aggressive or wandering.
Does sundowners, wandering and aggression happen AFTER he stops being able to recognize people?
Is it inevitable?
At this point I need to do everything for him and he’s not troubled by it.
He’s always been very relaxed. Could he possibly remain so?

April 27, 2019 (edited)
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Answer Summary

Members shared their varied experiences with dementia progression, with some describing loved ones who remained calm and content throughout... Read more

Members shared their varied experiences with dementia progression, with some describing loved ones who remained calm and content throughout the journey, while others experienced significant personality changes including restlessness, aggression, and sundowning that could begin as early as mid-afternoon. Several members emphasized that dementia affects each person differently, noting that pre-existing personality traits don't always predict future behavior, as even gentle individuals can become agitated while others maintain their peaceful nature until the end. A recurring theme was the unpredictability of the disease and the importance of going along with changed realities rather than correcting, with members offering hope that some people do remain gentle while acknowledging the emotional toll when dramatic shifts occur.

A myALZteam Member

Not necessarily, my sister’s husband died last year after battling Alzheimer’s for years. He never went through that difficult stage, at least that she mentioned.

April 30, 2019
A myALZteam Member

Oh Vicki, that’s horrible about his behaviour reminding you of his affair, but I think the message you should take from his compliments and advances is that given the opportunity he would pursue you and plan a life with you all over again.

April 27, 2019
A myALZteam Member

Interesting question, Roxane. Mentally, Jackie has been calm and very accepting of her situation. An odd flash, but no enduring anger, resentment, evident frustration. Physically she is, even now, what she always has been - very busy. She also has retained, it seems, some curiosity. She is rarely awake and still at the same time even though her movements have neither purpose nor much control. Though she is bed bound she has massive core strength and burns loads of calories, making feeding and maintaining her weight a challenge. Everyone has their own way and I hope your husband may continue on his relaxed one. S.

April 27, 2019
A myALZteam Member

Could be. My sister in law was very easy through the whole process. She was always happy! Now my husband has it, and he is much different than she was! He is full of energy, and driving me nuts! He wants to go in the car constantly. It’s hard for me to get things done around the house with all the interruptions, plus he is moody too!

April 27, 2019
A myALZteam Member

My husband is about the same. He declines around 2 pm and that's when he "wants to go home" etc. and gets very anxious. He also gets angry if I disagree with him so you have to just go along and try to not "rock the boat".

May 14, 2019

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A myALZteam Member asked a question 💭
St Lazare Quebec Canada