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Like i will say something and he will disagree or get mad and then i try to explain and he will turn it around and say it was my fault. Sometimes i feel like i am insane. There are days where he has had a few bad days and then family will come over and he will be just fine for like an hour and they dont see what i see everyday. Then the family dont believe me i feel Like i am not telling the truth. But they dont see him at his bad days. When they finally do its like a light bulb. I am… read more

January 30, 2019
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Answer Summary

Members connected deeply over the isolating experience of caring for a spouse with Alzheimer's while family members dismiss the severity of... Read more

Members connected deeply over the isolating experience of caring for a spouse with Alzheimer's while family members dismiss the severity of the disease, with many sharing stories of feeling doubted, criticized, or even reported to protective services by relatives who only see brief, controlled interactions. Several members described practical ways to help family understand the reality, including inviting them to stay for extended visits, playing simple games that reveal cognitive decline, and setting boundaries by stepping back from family events while still allowing the person with Alzheimer's to maintain contact. A recurring theme was the emotional toll of being misunderstood and unsupported by family, offset by gratitude for friends and online communities who truly see the daily struggle and offer validation without judgment.

A myALZteam Member

you just hang in the Barb. Honey it dont get better but you will get better. Just do the best you can and dont worry about the ffamily. Do they come often and do they help? Its ok to pray for Gods will to be done. Dont you dare feel guilty. Stay on this site and vent and we will help you as much as we can. Keep your head up and be strong

February 7, 2019
A myALZteam Member

I’m sorry Barb. Please take care of yourself no matter what! We are not superwomen!

February 9, 2019
A myALZteam Member

I hear you Cindy and Ruby! I cry everyday and I think I am losing it too. Some people are so insensitive and don't get it is all I can say. My thoughts and prayers are with you.

February 6, 2019
A myALZteam Member

I feel our close friends do more than family and that is sad. But its their loss

January 30, 2019
A myALZteam Member

I have a similar problem and it irks me when people say that he is ‘fine’ . It is a matter of education I think. Most people really don’t know what Alzheimer’s is all about until they are in the throws of it. I try to educate them and also be with them for hours at a time. One thing that brought reality to bare was sitting down to play games. There they can see that my hubby cannot follow simple instructions and basically cannot play games 5 year olds can. It is a stark reality when behaviour does not tell the story.

August 31, 2019

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Kissimmee, FL

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