I'm getting frustrated with having to repeat instructions over and over again. How do others on here deal with this?
In the beginning I would get extremely frustrated with my mother for asking the same few questions over and over. I finally found that 1. you can act like it's the first time you've heard it 2. you can answer the same every time 3. you can give a different answer every time for a little humor (my mom catches this every now and then!) 4. distract him with anything else. It's amazing and difficult to watch them live in the same moment over and over. I have learned how truly amazing our brains are. Let me tell you it's a lot more fun if you find the humor in it. Good luck and realize you are not alone.
How will it "get better" Lianna? Maybe the humour helps with our tolerance and resilience but, in my experience, as dad's health deteriorates, the repetitive questioning is more frequent and more intense. My dad gets himself into a spiral and, despite best efforts to distract, he continues until bed time. We know the next day that question will have gone but it will be replaced by another at some time. We have noticed that the questions always have a trigger...really random sometimes... a chance meeting, a throwaway remark, a snippet of dialogue on TV, a newspaper headline.... sometimes it's only in the moment after he's gone to bed that we go "A-ha!" It's so hard!
Bless you, Irene. Having a sense of humor is what saves me. I have done that as well. That is changing the answer. When I am in a good space, I'll make up an elaborate story. I am a fiction writer in my retirement; so I try to have fun with it. Also; I try to remember 'live and let live'. it doesn't always have to be my way.
Just think about this for a moment. What if you had this disease and you asked over and over . What would you like them to say to you? Hold on to these small moments. Start a journal about what you see and the changes you are witnessing.
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