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Inside The Mind

Inside The Mind

My dad is 90 and in his 10th year of Alzheimer's. He lives in an assisted living facility with my 89 yr. old mom (his only connection to reality). He still has his endearing personality (through little quips and childlike comments), and is so kind to everyone he sees. But, he does not seem to understand how to perform the most basic activities anymore or understand what he is to be doing from one moment to the next. He doesn't know what goes on his toothbrush and asks what he is to do next after… read more

A myALZteam Member said:

Depending on the effects of determination of the brain will decifer what will decline
But remember this They are still in there
They can’t communicate as well as before but sometimes we can reach them
Familiarity is key to responses
Use all the senses of touch smell taste sight hearing to reach your loved one in any stage of the disease
Individuals will respond differently depending on connection
Make those responses a way of reaching them
I’ve worked with folks who knew they were forgetting and know the frustration of things not working. In my many years of work it never a ceases to remind me that there is a person in there and always try, you might be surprised in their response
A person cannot tell time but can spell any word you ask them
May not do daily routine activities but can tell you how to play a certain with ease
If your loved one loves ice cream - give them them that pleasure
If they always loved dogs - bring a dog to visit
If they love country music -play some old tunes for them to listen
Some examples
Bring photo albums of pics from 25 yrs ago
They may remember...

posted over 2 years ago
A myALZteam Member said:

LeeAnne and Michelle, yes their personalities change so much. I had every intention of always keeping him at home and looking after him. Unfortunately, I did not know then how he would change from the kind, caring loving man I was married to for 52 years to a quite violent man at times. Yes, in the beginning you can laugh at some funny things that happened, but not any more. Everything changes with this horrible disease. Michael is now in care and fortunately only ten minutes walk from my home and I am able to visit twice daily. The grief I suffer is heart breakingly sad, I really feel as if my heart is going to break when I cry. I have learnt so much, and now have so much more empathy for other people who also suffer. I am just so pleased he doesn't know how he has changed, he is not aware. It is the families who suffer so much, it is just ongoing. All I can say is, I do know how much you are all suffering, your loved one has changed, and all you can do is remember the happy times, it is not their fault.

posted almost 2 years ago
A myALZteam Member said:

I do believe that God will give us each the strength for every day to be able to care for our loved One and make the decisions best for them. My husband says the same thing about he's stupid or doesn't know anything. It is definitely not true but this disease just slowly robs them of their ability to do things that were once so easy for them to do or understand. It breaks my heart when Bob is trying to do something on his phone and can't or try to find the right button on the remote to change channel or increase sound. I know it will get worse as time goes on. We All need to stand together and pray for One Another. Have a wonderful day tomorrow!!! God Bless each of You!!

posted almost 2 years ago
A myALZteam Member said:

Ladies ~ Our sermon at church today was all about not letting life's trials steal our hope in God's promises. I know we can all relate to feeling defeated, even if we are not believers. I am grateful that I have my faith to comfort and lift me up. My husband is not (yet) hostile or grumpy but he does get frustrated and repeats often "I'm so stupid" or "I don't know anything!" Yet, he never forgets to put out the trash, water the garden, make his bed, record his golf on TV and looks forward to actually playing golf on Thursdays with a lovely couple who have "adopted" him. He doesn't remember their names, but he says, "I think they really like me!" The progression is different for everyone but I believe our affection and accommodation to their needs helps them to feel valued--even if they don't remember where they were this morning!! I have taken up acrylic painting and it is a great joy and outlet for me. My husband says he is glad that I enjoy it so much!

We are in year 7 since his 1st MCI diagnosis, 3 years since his early Alzheimer's diagnosis. I believe he is between stages 5 and 6 now. He is now 80 yrs old. I know the worst is yet to come, but I continue to trust in God's provision for our future and my ability to care for him as long as I can. One of my favorite hymns is "God Can Make a Way" and I have seen His faithfulness throughout my lifetime. May I encourage each of you to pray? He loves you and He hears your cry.
Martha

posted almost 2 years ago
A myALZteam Member said:

Do you remember how we had to teach little kids to do things? Lots of steps....
1. Find toothbrush
2. Find toothpaste
3. Take lid off toothpaste.
4. Squeeze out little bit toothpaste onto brush
5. Set down toothbrush
6. Put lid on toothpaste
7. Put toothbrush in mouth
8. Brush by moving toothbrush up and down in mouth.
9. Do side teeth
10. Do back teeth on top and bottom
11. Spit all liquid into sink
12. Run water in sink
13. Rinse off toothbrush.
14. Have drink water.
15. Put everything away.

As I understand it, there is a lot of missing steps or mixed up steps so that he might not realize an important step is there or maybe he sees step 15 (put all away) as being step 5. So then what to do as nothing left to do the steps for brushing the teeth.... Food for thought at least1

posted over 3 years ago
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