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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
June 16, 2017
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Answer Summary

Members shared their experiences with confusing or overlapping dementia diagnoses, with several describing loved ones receiving multiple... Read more

Members shared their experiences with confusing or overlapping dementia diagnoses, with several describing loved ones receiving multiple labels including Alzheimer's, vascular dementia, Lewy Body, and frontotemporal dementia, often without clear distinctions between them. Several members emphasized that definitive testing is rare and that diagnoses can change over time, noting factors like strokes, mini-strokes, and even prolonged anesthesia may contribute to cognitive decline or faster progression. A recurring theme was that the specific label matters less than focusing on comfort, managing symptoms day by day, and drawing strength from community support through the exhausting caregiving journey.

A myALZteam Member

My husband was diagnosed with vascular dementia! Then they went on to say he has Parkinson Lewy Body Dementia. I don't know where we're truly at! He had serious 9 Hour surgery a year ago and I think that made the dementia progress!

July 4, 2017
A myALZteam Member

My brother was initially diagnosed with early onset frontotemporal dementia but has now been diagnosed with Logopenic variant Alzheimer's. He is 59 now. His speech is disappearing very quickly and is no longer able to write. It is so sad watching a loved one fading away!

June 23, 2017
A myALZteam Member

Yes I have heard of many being diagnosed incorrectly. My husband is being re evaluated next week but weather or not it is Alzheimers or dementia I could not have gotten this far without the support I have recived here. I know there is a difference between the different types of ALZ and dementia but they are so similar it's hard to see the difference. Have they change meds etc with finding out she has vascular dementia? Hugs to you and hope mom is doing the best she can

June 16, 2017
A myALZteam Member

Yes. Jim. Is the same. And it's hard to see This. But relax. And enjoy his good moments

June 23, 2017
A myALZteam Member

There are many forms of dementia it's like an umbrella

June 19, 2017

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