End Stage Experience
End Stage Experience
I'm curious...when people say the loved one is in end stages of alz, what is the loved one experiencing? I wonder how much difference there is between different people.
Our experience was a 10+ year journey with my mom and by the last few weeks she was unable to walk, more incontinent, wasn't eating as much, having a hard time speaking, asked the same question literally every 2min and of course became waaaaaay more agitated than usual. It was a gradual decline but towards the end it was as though all symptoms were on fast fwd.
@A myALZteam Member I can also add that in the Spring and Summer she was walking (with her walker), eating like a Queen, singing to songs, wouldn't get agitated, etc. Thanksgiving she was "ok" for the place she was at (incontinent, not eating as much, unable to walk, etc) as well as Christmas. After Christmas, literally the next day, it was if a switch went on and all systems were go! It was bizarre? We were used to the declines and the new decline would be the norm for awhile but it was if her body just said I am all set with this! If you have any others questions, as far as our experience, ask away 😉
A myALZte...
I think all people are different. But from what i have seen of end stage alz the person doesn't really have a clue what is happening.
When. They no longer able to communicate. And tell you their. Wants. And usually spend most of their time in bed.
Also if it helps my mother had no idea she had dementia and through the stages she would do different things but I found her happy in her different life a lot of times. Right before her passing someone was talking in her room and said 'sick' and my mother turned around and asked...'Am I sick?' So she had no idea which helped our family tremendously.
