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End Stage Experience

End Stage Experience

I'm curious...when people say the loved one is in end stages of alz, what is the loved one experiencing? I wonder how much difference there is between different people.

posted February 24, 2017
A myALZteam Member

This disease is so cruel. I am just so sad, my husband can no longer communication with me so I don't know if he is hurting or hungry. Can't understand when I ask him to do things, lift his arm or leg, etc. He sleeps a lot and when he's up just sits in his chair. I started him on depends a week ago, it started out with just wetting but now has progress to him not going to the bathroom as all on his own. I guess he's in the last stage but I am still having a hard time with all this. I just want to help him not suffer.

posted June 8, 2020
A myALZteam Member

@A myALZteam Member I can also add that in the Spring and Summer she was walking (with her walker), eating like a Queen, singing to songs, wouldn't get agitated, etc. Thanksgiving she was "ok" for the place she was at (incontinent, not eating as much, unable to walk, etc) as well as Christmas. After Christmas, literally the next day, it was if a switch went on and all systems were go! It was bizarre? We were used to the declines and the new decline would be the norm for awhile but it was if her body just said I am all set with this! If you have any others questions, as far as our experience, ask away 😉

posted March 3, 2017 (edited)
A myALZteam Member

Our experience was a 10+ year journey with my mom and by the last few weeks she was unable to walk, more incontinent, wasn't eating as much, having a hard time speaking, asked the same question literally every 2min and of course became waaaaaay more agitated than usual. It was a gradual decline but towards the end it was as though all symptoms were on fast fwd.

posted February 25, 2017
A myALZteam Member

I think all people are different. But from what i have seen of end stage alz the person doesn't really have a clue what is happening.

posted February 24, 2017
A myALZteam Member

So so sad. How is your husband doing now. My husband still talks some. Most of the times he can still go to the bathroom by his self. Just has to make sure he also pulls down the depends before he sits down. He also just sits most of the day looking out the window or the T.V. Has a very hard time staying awake. He likes to take a ride and I try and take him out at least every other day, but getting harder and harder for him to get in and out of the car. I really dread the day when he will not be able to walk.

posted July 2, 2020

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