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End Stage Experience

End Stage Experience

I'm curious...when people say the loved one is in end stages of alz, what is the loved one experiencing? I wonder how much difference there is between different people.

A myALZteam Member said:

Our experience was a 10+ year journey with my mom and by the last few weeks she was unable to walk, more incontinent, wasn't eating as much, having a hard time speaking, asked the same question literally every 2min and of course became waaaaaay more agitated than usual. It was a gradual decline but towards the end it was as though all symptoms were on fast fwd.

posted about 4 years ago
A myALZteam Member said:

@A myALZteam Member I can also add that in the Spring and Summer she was walking (with her walker), eating like a Queen, singing to songs, wouldn't get agitated, etc. Thanksgiving she was "ok" for the place she was at (incontinent, not eating as much, unable to walk, etc) as well as Christmas. After Christmas, literally the next day, it was if a switch went on and all systems were go! It was bizarre? We were used to the declines and the new decline would be the norm for awhile but it was if her body just said I am all set with this! If you have any others questions, as far as our experience, ask away 😉

edited, originally posted about 4 years ago
A myALZteam Member said:

I think all people are different. But from what i have seen of end stage alz the person doesn't really have a clue what is happening.

posted about 4 years ago
A myALZteam Member said:

This disease is so cruel. I am just so sad, my husband can no longer communication with me so I don't know if he is hurting or hungry. Can't understand when I ask him to do things, lift his arm or leg, etc. He sleeps a lot and when he's up just sits in his chair. I started him on depends a week ago, it started out with just wetting but now has progress to him not going to the bathroom as all on his own. I guess he's in the last stage but I am still having a hard time with all this. I just want to help him not suffer.

posted 9 months ago
A myALZteam Member said:

When. They no longer able to communicate. And tell you their. Wants. And usually spend most of their time in bed.

posted over 3 years ago
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