Support networks for early onset

Support networks for early onset

Has anyone else found that the support networks for Alzheimer's are so focused on the elderly (when the disease typically manifests), that there is very little for someone with early onset? My wife is 63, and was diagnosed about a year ago with early stage Alzheimer's disease. Local AS suggests discussion groups, but she won't go because the entire group is much older than she is, and she doesn't want to be made to feel "old". i am sure it would help to get together with others… read more

A myALZteam Member said:

Hi I am 57 and have early on set dementia and finding it difficult to meet people. Here is full of carers which I respect but would like to interact with people in the same place as myself so fully understand your wife x

posted almost 3 years ago
A myALZteam Member said:

We are really lucky as we have a facility especially for early onset dementia. Pau was 60 when he was diagnosed and we get Social Services funding for attendance. He also has a Personal Assistance who comes twice a week to take him out again funded. So I can work as we have a mortgage to pay off.

posted almost 3 years ago
A myALZteam Member said:

My sister is in the advanced stage of early onset. She was diagnosed at 52, and is now 61. We had the same problem, but I relied on her friends to help her maintain a social life for a few years, until she began forgetting who they were. You may be able to reach out to others in your area through the local Alzheimer's Resource Center, and create a small group through them. Good luck.

posted almost 3 years ago
A myALZteam Member said:

My husband is 63 and now has full altzheiners he was diagnosed with early memory loss at 57 which would eventually lead to altzheiners ! Sadly the progression of EARLY ALtzheuners is faster in early younger patients than in the old ! We have a Carer now as he is losing bodily functions and eating ability and washing functions and his memory is bad ! It sadly is what it is I don't do groups !! It's just who I am but I get that she's reluctant as the prognosis is beyond awful a disease of cruelty to be locked in a mind that doesn't work and a body that does ! It is as frightening for them as it is for us but we u sets Rand they sadly don't ! Empathy and compassion and love is all we can give them assurance that they will be cared for no matter what comes in the future ! Saying this YOU must also care for yourself or if you aren't functioning then who will be there for your wife xxx STRENGTH and hugs

posted about 3 years ago
A myALZteam Member said:

My husband is 63 was diagnosed six years ago with early onset memory loss which would lead to altzheiners Sadly he is 63 and in full stage if altzheiners he is at home but I have a full time day Carer to help feed bath shave and dress him she takes him out for walks along the beachfront twice a day ! I was doing all this myself for 3 years till I realized I was going to die first if I cared on with this stress !!! Thus way I am spending quality time if one can call it that with him when she is gone and I can handle him with more patience than before I work full time so now cannot leave him
Alone at home it's too dangerous he wants to go out and will get lost ! In our country medical aid does NOT contribute towards care it comes out of your own pocket ! But since I explored a full time Carer the fact that he is being cared for while I am at work is a great help to me

posted about 3 years ago
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