Has anyone else found that the support networks for Alzheimer's are so focused on the elderly (when the disease typically manifests), that there is very little for someone with early onset? My wife is 63, and was diagnosed about a year ago with early stage Alzheimer's disease. Local AS suggests discussion groups, but she won't go because the entire group is much older than she is, and she doesn't want to be made to feel "old". i am sure it would help to get together with others facing… read more
Hi I am 57 and have early on set dementia and finding it difficult to meet people. Here is full of carers which I respect but would like to interact with people in the same place as myself so fully understand your wife x
We are really lucky as we have a facility especially for early onset dementia. Pau was 60 when he was diagnosed and we get Social Services funding for attendance. He also has a Personal Assistance who comes twice a week to take him out again funded. So I can work as we have a mortgage to pay off.
I am caring for my sister who is in the late stage of early-onset. She was 53-54 when the symptoms began. From reading her journals, I discovered that she knew there was a serious problem, but she was very good at hiding it. She is now 61, in the late stage. I agree that there is very little information available. I have searched and researched, read literally every book on the subject that is in our local library. I have learned a great deal by trial and error. I'd be happy to exchange information and ideas. I recently discovered a website - glorious opportunity - its also a Facebook page. It was set up by Dr. Jennifer Bute. She was a GP who worked with Alzheimer's patients and caregivers. She is now afflicted with early onset, so she is giving a first hand account of daily life from her perspective. Amazing wealth of information. There are several links provided that are written by and for Alzheimer's patients in various stages. I highly recommend checking it out. I learned more from Dr Bute in 2 hours of checking out the fb page than I have learned in the last 2 1/2 years caring for my sister and researching at the library. Hope this helps, and I'm usually available in the evenings if you'd like to text me (Phone number can only be seen by the question and answer creators).we can maybe arrange a good time to talk on the phone. I wish you well, and will continue to pray for you.
My husband is 63 and now has full altzheiners he was diagnosed with early memory loss at 57 which would eventually lead to altzheiners ! Sadly the progression of EARLY ALtzheuners is faster in early younger patients than in the old ! We have a Carer now as he is losing bodily functions and eating ability and washing functions and his memory is bad ! It sadly is what it is I don't do groups !! It's just who I am but I get that she's reluctant as the prognosis is beyond awful a disease of cruelty to be locked in a mind that doesn't work and a body that does ! It is as frightening for them as it is for us but we u sets Rand they sadly don't ! Empathy and compassion and love is all we can give them assurance that they will be cared for no matter what comes in the future ! Saying this YOU must also care for yourself or if you aren't functioning then who will be there for your wife xxx STRENGTH and hugs