We have done the same thing. Feeling like the neurologist couldn't "do" anything more to assist my Dad, we just stopped going. When all they can do is look at him and say "yeap, it has progressed", (which is obvious), it didn't seem beneficial anymore to even go. Is that wrong? ??

I agree that a geriatrician is a great idea. I just wanted one doctor to understand all of my husband's health issues as he has multiple doctors for multiple issues and lots of medications. If there is no geriatrician available, I think it is important to maintain a relationship with some doctor who is knowledgable regarding the dementia and possible behavioral or sleeping medications. In our case it was previously a neurologist and now a geriatric psychiatrist. I want, and have used, a doctor who I can call if there is a sleep issue or and anxiety issue that needs attention, possibly a medication adjustment, right away.

We actually started at the geriatrician, who suggested he go to a neurologist for testing.. Seems like we are all feeling this (lost) way to some extent! I feel like the more doctors that see him (whichever type they are!), the better I feel. If your Dad hasn't seen a geriatrician yet, perhaps you should get him (and you) an appointment. It couldn't hurt, anyway. Just might be one more doctor's appointment, though. Thank you, and good luck to you.

It's amazing how stressful it is on the family, and everyone deals with it so differently from each other. I just feel like we are swimming in unknown waters, and wanted to be sure we were doing all we could. I suppose there's really nothing much that can be done. Except for watch. And as I am sure you know already, it's hard. Good luck to you, sounds like you have your hands full....

My husband's primary doctor referred us to a neurologist for a cat scan to rule out strokes, tumors, etc. since then (last year), we see the neurologist once a month to monitor medication, answer questions and such. But I was told recently that I need to take my husband for a second opinion, to determine what kind of dementia he has. Apparently, there are different meds for the specific type (Alzheimer's, Lewy Body, etc.) Do I take him to another neuro, or is there a doctor who specializes in dementia?