I have been finding it very difficult to get support due to my husbands age, it appears to most that he is to young to have dementia because he is only 48 years old.
It sure would be nice to know that I am not alone.
My sis got sick around 58 and I have the same difficulty finding others dealing with this. She is 62 now and most of the time acts like she's 80. It's so frustrating because she looks like herself but isn't. Does this disease go slower when your younger?
I'm in the US and, just so you know you aren't alone, supports for people under 65 are very limited here too. I've had a couple of friends with early onset and this has been a huge challenge. The biggest issue here is insurance which we usually get with our employment. Without a job and under 65, health insurance is very expensive. Also, in my experience, the disease usually progresses more rapidly for people with early dementia unless it is vascular.
My experience and information from others is that early onset tends to move faster and that seems to be our case changes in 18 months are significant I keep a Jornal of events that are significant confusion causing a scene wetting himself walking into closets etc