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A myALZteam Member asked a question 💭
Tipton, IN

How do you know when someone is in reality or a fantasy?
Do they know what reality is or do they think a lie is true?
Where can you get help for behavior issues?

April 4, 2016
 · 
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Answer Summary

Members shared deeply personal experiences about distinguishing reality from fantasy in loved ones with dementia, with the overwhelming... Read more

Members shared deeply personal experiences about distinguishing reality from fantasy in loved ones with dementia, with the overwhelming consensus being that people with dementia genuinely believe their confabulations and mixed memories are real, making it pointless and exhausting to argue or correct them. Several members recommended practical strategies including redirecting attention when possible, agreeing with their perceptions to reduce conflict, and consulting resources like the Alzheimer's Association website and the book 'The 36 Hour Day' for guidance. A recurring theme was the emotional weight of managing aggressive or violent behaviors, with one member describing how a psychiatric evaluation and medication adjustment helped calm an aggressive resident at an assisted living facility, suggesting similar intervention might help others facing safety concerns.

A myALZteam Member

I just found a word for this "confabulation." " Persons living with dementia often get details mixed up and sometimes fabricate stories from fragmented memories. The person living with dementia believes without question, that this memory is complete and intact. Since the belief is absolute and sincere, it makes no difference that they are illogical, impractical, or even impossible" This is an insert from an item I was reading.

April 12, 2016
A myALZteam Member

I do not think it is fantasy, but an earlier reality - the first parts of their lives, that
we often do not know about. So it does come across as fantasy to us.

May 22, 2016
A myALZteam Member

Jay is in a different reality most of the time. I've learned to live with it. You should just agree with your loved one regardimg their perceptions its easier.

April 30, 2016
A myALZteam Member

go to the Alzheimers web site and they have a wealth of information on there. Read the book "The 36 hour
Day", it is very enlightening.

April 26, 2016
A myALZteam Member

If its unbelievable to you, ex: "my loved one will talk about the children being there before church, but now they are gone" (and a thousand more moments like that) we have leRned that she does believe it and dont dwell on it or argue with her. Bottom line what's the point?
Heartbreaking buts its her reality for the moment

April 28, 2016

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