"Sun Downers" | myALZteam

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1939 questions
"Sun Downers"
A myALZteam Member asked a question 💭

How do you cope with "Sun-downers". My husband wants to go "home" everynight. He even packs things he is taking with him. Every trick I know does nothing to help.

A myALZteam Member

My mother used to want to "go home" to help her dad. ( My mom was 92 when she came to live with us.) I would make up some excuse. If it was dark, I would tell her he had already gone to bed and we… read more

posted October 17
Does Anyone Have Any Ideas On How To Stay True To Yourself During This Trying Time Of Being A Full Time Caregiver???
A myALZteam Member asked a question 💭

Maybe this question was posted prior to my joining this site & if so, please forgive
My husband was diagnosed in 2012, & now needs me for everything. He sometimes gets angry if I leave the room. I don't feel like a person anymore. I don't get to be just me anymore. I don't get to do the things some of the things I used to enjoy. Sometimes I feel resentful, & angry at this disease. Sometimes I am angry at his children for not helping out even though I know in my heart they are busy with… read more

A myALZteam Member

Jank, I'm so sorry! Is there anyway you could have someone come in and care for your husband once or twice a week. Or can someone in your family come help with him? Then you can have some ME time… read more

posted October 22
Does Anyone Else Notice A Lot Of Twitching And Jumping When Their Loved One With Dementia Is Sleeping During The Day.my
A myALZteam Member asked a question 💭

My mums limbs twitch and jump when she is dosing during the day.

A myALZteam Member

Me too

posted September 6
Stages Of Altzheimers
A myALZteam Member asked a question 💭

Hi all, just wondering how long other people have found from when they first noticed symptoms of loosing things and memory loss to when their loved one becomes incontinent and unable to do their own personal cares etc
My husband has shown signs of altzheimers for 10 years now and getting progressively worse over the last 3 and seems to have taken quite a dive in the last year. Also he was formally diagnosed a year or so ago. Doc says mid stage early onset (he's 62 now). He is very lost… read more

A myALZteam Member

My husband is getting close to late stage. He needs help changing and bathing. I notice he is not eating much any more also. He has lots of accidents so I keep him in depends. Sleeps about 16 hours a… read more

posted September 22, 2022
My Husband Has Alzheimers And He Is Really Cold Most Of The Time As Well As Being Very Tired. Is This Symptomatic Of The Disease?
A myALZteam Member asked a question 💭
A myALZteam Member

So sorry to hear this…it is just like starting over. You will find the strength and courage to face this challenge. My
Mom sleeps a lot and is always cold…,.,when we are out I keep a lined… read more

posted August 25
Two Questions. Do You Tell Your Loved One They Have Alzheimers? And Do You Go To THEIR Psychiatrist To Ask Questions?
A myALZteam Member asked a question 💭

I am trying to figure out how to help my mother-in-law who has been with us 2 months.

I need an official diagnosis but would like more details on caregiving and what level she's at, and whether certain meds are affecting her paranoia. Need advice on psychiatric meds, etc. So do I go to appointments using HER insurance? Or go to my own psychiatrist and ask questions about her? (I don't actually have one) How do you manage these things?

And I'm afraid to say to her "you have Alzheimers so I need… read more

A myALZteam Member

In the past when my husband went through a time of denial that he had ALZ I did create a note listing all the concerns and behaviors. I gave that to the Dr to review while she examined him. As you… read more

posted October 26
Suggestions To Keep Mom (severe Mobility Issues Due To Arthritis) Occupied?
A myALZteam Member asked a question 💭

My mother can't do any of the things she used to enjoy like cooking, reading, shopping, traveling. She can't follow plots or comprehend more than a headline. Although the tv is on all day she isn't actively listening anymore. To keep her occupied we have reorganized dresser drawers & her jewelry box, gone through boxes of photos & worked on the family tree together. She has short term memory loss but is pretty clear about family history & loves to talk about relatives & events from the past. I… read more

A myALZteam Member

I found another item that my husband like to play with and keeps him busy for hours. It is the water wonders. The toy that you push a button and it shoots small round ball up into baskets, so the… read more

posted March 3, 2021
Anyone Have Alzheimer's Patient Loss Vision
A myALZteam Member asked a question 💭

Teddy woke this morning you use the loo. I put the light on. But: he couldn't see. He told me he was blind. This went on for two hours. I finally got him to sleep a hour or so. When he woke up.. he could see again. He saw doctor . She said Alzheimer's can cause the brain to stop communicating with any part and resume communication

A myALZteam Member

Thanks for sharing this.

posted January 24
I Have Started Using ChatGPT-4 For Advice On Various Problems. Here Is A Question I Just Asked.
A myALZteam Member asked a question 💭

My wife has Alzheimer's. She will ask me a question and then continue to ask me the same question even though I have given her the answer each time. I know it is because she can't remember my response but how can I keep from getting angry with her for the continual repetition

I'm truly sorry to hear about your wife's condition. Alzheimer's disease is challenging for both the person diagnosed and their caregivers. It's natural to feel a range of emotions, including frustration and… read more

A myALZteam Member

I write my husband a daily note of what he has to do, what I have to do, and what we have to do together. He can still read a little bit….but he carries the note around like a toddler would carry… read more

posted September 2
How Do You Ever Get Past The Guilt And Sadness Of Placement?
A myALZteam Member asked a question 💭

On one hand, I'm relieved...the day-to-day stresses of caring for a 200lb toddler and working a FT job are over. I tried my best and did my best (mostly) to keep him home...but it was becoming increasingly difficult. I toggle back and forth between, "I'm okay" and "I'm SO sad". I'm glad to be able to turn my full attention back to my job and my health. Taking care of so many things I had to put on hold for the past few years, it's overwhelming. I'm decluttering, throwing away, donating and… read more

A myALZteam Member

Sending you love!!

posted November 14
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