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Alzheimer's

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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
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"Sun Downers"

"Sun Downers"

How do you cope with "Sun-downers". My husband wants to go "home" everynight. He even packs things he is taking with him. Every trick I know does nothing to help.

A myALZteam Member said:

I experience a lot of what is described here. The sundowning is really bad and nothing works. My husband gets extremely aggressive and will start… read more

posted 1 day ago

Does Anyone Have Any Ideas On How To Stay True To Yourself During This Trying Time Of Being A Full Time Caregiver???

Does Anyone Have Any Ideas On How To Stay True To Yourself During This Trying Time Of Being A Full Time Caregiver???

Maybe this question was posted prior to my joining this site & if so, please forgive.
My husband was diagnosed in 2012, & now needs me for everything. He sometimes gets angry if I leave the room. I don't feel like a person anymore. I don't get to be just me anymore. I don't get to do the things some of the things I used to enjoy. Sometimes I feel resentful, & angry at this disease.… read more

A myALZteam Member said:

Sometimes you can't help feeling anger and frustration. We are still human. Many times it can be like dealing with a toddler in an adult body. I am… read more

posted 9 months ago

Stages Of Altzheimers

Stages Of Altzheimers

Hi all, just wondering how long other people have found from when they first noticed symptoms of loosing things and memory loss to when their loved one becomes incontinent and unable to do their own personal cares etc...
My husband has shown signs of altzheimers for 10 years now and getting progressively worse over the last 3 and seems to have taken quite a dive in the last year. Also he was formally diagnosed a year or so ago. Doc says mid stage early onset (he's 62 now). He is very lost… read more

A myALZteam Member said:

Looking back I now realize she had minor periods of forgetfulness two ot three years before being diagnose. Her diagnosis came when there was a dramatic… read more

posted 9 months ago

Anyone Have Alzheimer's Patient Loss Vision

Anyone Have Alzheimer's Patient Loss Vision

Teddy woke this morning you use the loo. I put the light on. But: he couldn't see. He told me he was blind. This went on for two hours. I finally got him to sleep a hour or so. When he woke up.. he could see again. He saw doctor . She said Alzheimer's can cause the brain to stop communicating with any part and resume communication

A myALZteam Member said:

On a few occasions caregivers have reported what seemed to be temporary loss of vision or hearing that may be a ravished brain cells "blip"..sort of… read more

posted about 1 year ago

Suggestions To Keep Mom (severe Mobility Issues Due To Arthritis) Occupied?

Suggestions To Keep Mom (severe Mobility Issues Due To Arthritis) Occupied?

My mother can't do any of the things she used to enjoy like cooking, reading, shopping, traveling. She can't follow plots or comprehend more than a headline. Although the tv is on all day she isn't actively listening anymore. To keep her occupied we have reorganized dresser drawers & her jewelry box, gone through boxes of photos & worked on the family tree together. She has short term memory loss but is pretty clear about family… read more

A myALZteam Member said:

My Mom spent hours sorting her jewelry according to my Dad. And Kleenex is an every day accessory. Needed but also my Mom tears it to use sparingly. I… read more

posted 8 months ago

Does Anyone Else Notice A Lot Of Twitching And Jumping When Their Loved One With Dementia Is Sleeping During The Day.my

Does Anyone Else Notice A Lot Of Twitching And Jumping When Their Loved One With Dementia Is Sleeping During The Day.my

My mums limbs twitch and jump when she is dosing during the day.

A myALZteam Member said:

My husband also has a lot of twitching and hand gestures while sleeping.thinks he hears knocking on door. Things happening outside. Yells out in anger… read more

posted 7 days ago

Is Anyone Dealing With Trying To Learn How The Household Repairs, Etc Are Done Without Having To Call In A Professional?

Is Anyone Dealing With Trying To Learn How The Household Repairs, Etc Are Done Without Having To Call In A Professional?

My husband used to be able to fix or figure out most of our usual household problems/repairs, but now although he really isn't a person with severe dementia as yet, he just does not remember how to do this anymore. We can't afford to hire someone every time something comes up, so I am the one who tries to figure out/fix or call someone if I can't. Of course sometimes a friend's husband can help… read more

A myALZteam Member said:

YouTube can help. Ace Hardware is much more helpful. Find handyman that works by the hour. Less expensive sometimes. Going through same thing.

Call… read more

posted 2 months ago

Do Your ALZ Loved Ones Start Creating Their Own Vocabulary?

Do Your ALZ Loved Ones Start Creating Their Own Vocabulary?

I know that ALZ can cause you to lose some words and understanding. But do you find that your loved ones start creating new words or phrases? Instead of a shower, Dad now takes a "shower-bath". And if we talk about shower, he doesn't understand. This is one of the easier ones to understand. It is making it hard to understand him. He knows what he is saying, but the rest of us don't. I think I may need to build a "Dad's Dictionary" as we figure these out.… read more

A myALZteam Member said:

My mum hasnt advanced to this stage yet but she has commented that "she is losing her words"...thankyou for the suggestion..I will definitely give it a… read more

posted 8 months ago

Soooo...why Is It So Hard...?

Soooo...why Is It So Hard...?

Why is it so hard to be patient? I know it's not their fault. I know it is the disease. But why is it so hard to answer the same question over and over again? Why is it so hard to to listen even when they aren't making sense? Why is it so hard to not expect more from them? It's been more than a year. Why am I not better at this?

I don't expect an answer. Just sharing what's running through my head before it comes out as tears. Love and hugs to all of you going… read more

A myALZteam Member said:

Exactly...and what make it worse is that some days I feel he is not that bad, so therefore I expect him to respond the way he used to. That's when I… read more

posted 9 months ago

How Long Can Alzheimer’s Patients Carry On Normal Conversation?

How Long Can Alzheimer’s Patients Carry On Normal Conversation?

My husbands family who only sees him about 3 or 4 times a year, can’t tell there is anything wrong him. Sometimes I think they doubt his diagnosis and what I tell them. He is on medication, still takes care of all his personal needs, drives in our very small town, and does most everything he used to do. He can carry on a conversation without most people noticing anything unusual. Yet at home with our immediate family, we see small things daily. He… read more

A myALZteam Member said:

Thank you Nothgiel, you are so right. However, our son and daughter both realize their dad’s problems so I have their support!

posted 10 months ago
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