Alzheimer's

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3 medium

Caregiver joy - I've lost mine

Caregiver joy - I've lost mine

I am 52, and left my job in April to say home and care for my husband.
He has 3 adult children. I have no children of my own.
I'm a devoted and loving wife & partner.
My goals have been to keep M happy, safe and give him as much joy as possible.
Now, I'm struggling.... more than I ever have.
I've lost my joy. Any joy.
I am i his only caretaker, with him 24/7. I am able to leave him for an hour or so, but not much longer.
When I do leave, I worry constantly anyway.
Taking him… read more

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A myALZteam Member said:

All the ladies out there have a blessed Mother's.

posted 15 days ago
7 medium

"Sun Downers"

"Sun Downers"

How do you cope with "Sun-downers". My husband wants to go "home" everynight. He even packs things he is taking with him. Every trick I know does nothing to help.

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A myALZteam Member said:

My story is very similar to yours. My mom has been in a facility for almost a year and after my dad passed away she lived with me for a short time and I… read more

posted about 2 months ago
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Does anyone have any solutions for night wanderers?

Does anyone have any solutions for night wanderers?

My mother has very restless nights, she wakes up between 1am and 5 am and tries to get up out of bed and wander, it can be 2-6x a night. Our worst nightmare happened three weeks ago when she got up and fell beside her bed and had a displaced fracture of the pelvis. She is on the mend but night time is a serious safety issue for us. I have ordered a bed alarm mat that works like a baby monitor that alerts us if she gets up off the pad as well as putting cushioned… read more

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A myALZteam Member said:

my partner has trouble getting to bed.he keeps forgetting that he said good night already.some nights he says good night up to 4 or 5 times.at times it… read more

posted 4 months ago
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Younger Early Onset Alzheimer's Caregivers

Younger Early Onset Alzheimer's Caregivers

My husband was diagnosed with Alzheimer's in March 2016 at age 51. My heart is still breaking. I am 43, I work full-time and we have three children (18, 20, 22). I am scared to death of what the future holds :(

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A myALZteam Member said:

I'm so sorry to hear this @A myALZteam Member

posted 11 months ago
7 medium

My Mum has nothing to do!

My Mum has nothing to do!

My Mum spent her life looking after other people and now she is poorly she has nothing to do. She has no hobbies or interests and she has a terrible back so is fairly immobile. This is not causing problems as her Dementia is progressing. She is teary in the afternoons and is generally depressed, she also gets very angry if we try to help her with things. It is so hard for us and especially for the kids (10 and 11) who want to do things with her but we have no idea what to do. She does… read more

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A myALZteam Member said:

That sounds like a wonderful caring daughter, such good thoughts for others ,a busy box

posted 15 days ago
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Does anyone have any ideas on how to stay true to yourself during this trying time of being a full time caregiver???

Does anyone have any ideas on how to stay true to yourself during this trying time of being a full time caregiver???

Maybe this question was posted prior to my joining this site & if so, please forgive.
My husband was diagnosed in 2012, & now needs me for everything. He sometimes gets angry if I leave the room. I don't feel like a person anymore. I don't get to be just me anymore. I don't get to do the things some of the things I used to enjoy. Sometimes I feel resentful, & angry at this disease.… read more

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A myALZteam Member said:

Oh bless you both! Firstly I would say what you already know, and that this is not your husband, but this terrible illness that takes over our lives -… read more

posted about 1 year ago
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My Mom is having a hard time sleeping at night!!

My Mom is having a hard time sleeping at night!!

My Mom doesn't stay asleep at night. She is awake more than she is asleep....she seems content to stay in bed, but I never know when she may decide to get up and start wandering. Then she wants to sleep the next day, won't eat, doesn't want to dress and is very hateful!! I try not to let her sleep the next day, except for short naps here and there....but that makes her harder to get along with!! Is anyone else having this same problem? Any ideas on what I might be… read more

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A myALZteam Member said:

Getting certified in your state by a Cannabis Doctor and getting CBD oil at a dispensary only (not at a store or online) for day doses and CBD oil for… read more

posted 14 days ago
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Does your spouse/relative have issues getting rinsed in the shower/bath?

Does your spouse/relative have issues getting rinsed in the shower/bath?

I help hubby to shower - don't have to wash him - as he sometimes can't work the controls. Plus I hand his showergel in to him and take it off him (and put it out of sight) as I discovered he was washing himself up to 3 times, having forgotten he'd done it!! If I don't hide it, he has come out of the shower to get it again!! I tell him he is rinsed but he continually argues, saying he doesn't 'feel' rinsed. It doesn't matter if I… read more

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A myALZteam Member said:

I have the opposite issue. My husband can still shower himself, but he forgets to do it and he doesn't like it when I remind him.

posted 4 months ago
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