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We've had one zoom call with Dr since we go away for the summer so this will be first Dr follow up since diagnosis in May of last year. Hubbys memory has significantly decreased and he gets agitated very easily now. I do I share changes with Dr at appointment with upsetting my hubby. My hubby doesn't see the changes at all. Will Dr do the memory testing again as he did at the first appointment. Will he order any other testing. Dr did put him on Memantine but if he is getting worse should… read more

January 25
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Answer Summary

Members offered helpful strategies for sharing updates about a loved one's decline with the doctor without causing distress at the... Read more

Members offered helpful strategies for sharing updates about a loved one's decline with the doctor without causing distress at the appointment. Several members recommended sending a message through the patient portal or dropping off a written letter a few days before the visit, giving the doctor time to prepare. A recurring theme was using creative in-office approaches, like being called to the front desk, to speak privately with the doctor, and members noted that memory testing frequency varies by doctor but can be requested.

A myALZteam Member

My mother's doctor actually specialized in Alzheimer's and had a wonderful solution to this issue that you may want to perhaps share with your doctor. After he came in and talked to us both, did the exam, etc. he left the room. Within a couple of minutes, he had his nurse come in and tell me that the front desk had a couple of questions about the insurance and could I just go up and talk to them. In reality, he would be in his office and the nurse took me there where he would ask me what REALLY is going on with her and I could speak very freely.

January 26
A myALZteam Member

I call primary care Dr. a couple of days before appointment and when assistant is testing him I step out and talk to Doc...so far this has worked out for me....

January 28
A myALZteam Member

It's a good idea to send the Doctor an email prior to the visit. I will do that before the next visit. Thank you

January 26
A myALZteam Member

Its best if you are able to pre-inform the doctor before the appointment. I understand you not wanting your loved one disappointed, my husband has been disappointed at doctor visits when we've spoken about his decline. In-fact he's walked out of an appointment because of this. Eventhough he's known his diagnosis, he doesn't always remember and it can be humiliating to hear others speak about his decline.

January 25
A myALZteam Member

@A myALZteam Member: I use the Patient Portal to send messages to his doctor, a few days before the appointment. I know that some people bring a letter and give it to the staff when they check in, but getting a letter at the last minute, right before an appointment, makes it harder for the doctor, who's already working with a tight schedule.

January 25

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North Richland Hills, TX