Pam. My prayers are with you as you navigate this disease. It is the hardest on you. My husband passed last year after 8+ years with this disease. We moved close to our daughter and family so she could help me. We had a caregiver and then Hospice and I had an Alzheimer’s Support group. All helped me keep him home until he passed. At 75 and starting a new life alone and without him after 51 years is hard. It’s quiet and lonely. But I continue on. Making plans to visit family and friends. I volunteering in my community and thankfully have my daughter and grandchildren to cheer me up. Only time, love and courage help you through the grief. We are all here for you. 💜💜

@A myALZteam Member, thank you for sharing your experience and staying with the group even 17 months after the loss of your husband. It helps more than you know.

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A myALZte...

We have been in varying stages of alzheimers for 17 years from first symptoms bee home with him full time about 6 years he doesn't really know anyone I'm who takes care if him doesn't remember our wedding or last 26 years no concept of Christmas pr much of anything anymore you get flashes rarely that might last for a minute he is still slightly mobile enough to move and hide things lol shuffles feet maybe 2 or 3 inches at a time. I know the end is coming some days I wish it was over but don't want it to end We discussed any extraordinary means to keep either of us alive and decided no to feeding tubes or anything It will be hard I know and I will miss him and everything will change I will have to move and loose our home of 25 years it's scary I often wonder if I will have a life after this is over starting over in my 70s is scary but guess I will survive HUGS TO ALL ON THIS LONG AND WINDING ROAD OF ALZHEIMERS BOTH FAMILY CAREGIVERS AND LOVED ONES WE SAY GOODBYE TO A LITTLE MORE EACH DAY BLESS YOU ALL

I don’t know how you feel about feeding/drinking via a syringe or inserting a tube for feeding. But I knew my husband wouldn’t have wanted that. He stated no artificial feeding in his advanced Health Directive. Anyway, once they stop eating/drinking, it’s usually less than a week and not more than 10 days, before they die, depending on their weight and such. And hospice will give him medication (by injection) to make sure he’s comfortable and not in any pain 🙏 🙏 🙏 💜 ♥️ ❤️

I don't have a complete answer to your question, but it sounds like he is depressed and could use a mood elevator. If he is on Medicare, he could qualify for PT or OT. "Bedfast" Stage could last MONTHS, or even YEARS, so getting him back to even a wheelchair or walker could improve his quality of life.