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My son is Down Syndrome and has been diagnosed with ALZ. I was able to take care of him at home until he fell last year. After the fall he was no longer able to walk at all , feed himself or… read more
Are any of you caring for your loved one at home? If so, what challenges are you facing? My husband is late onset Alz, early stage 6 so right now I am able to cope. But as things progress, I know I am in for some real challenges. Does anyone use hospice or home care providers? What were your opinions? Any helpful advice would be appreciated.
Hospice is great whether at home or in care facility. My husband has them in Memory Care.
widower age 73 who recently lost my spouse, living alone, children out-of-state, know that going forward will need a home health aide just for companionship; should I consider a male or female for someone to do outside activities with?
I wish you all the best on your new Journey
JDT
I've sent him some background and current info about her symptoms and he's responded that we can discuss during the visit. I have strict orders from her not to open my mouth. She has been so hateful the past two days, I'm questioning everything again. 😞
My husband did also have an MRI showing brain shrinkage. We just all share so much in common! What a comfort to have this support grp as an outlet!
Located on Vancouver Island in BC 🇨🇦
Thank you all for your suggestions
I'm puzzled. Almost everyday I read something about how difficult it can be to work with health care providers due to their misunderstanding of the needs of people with dementia and their caregivers. Over the past 9 years my husband has experienced at least 5 hospitalizations, 10+ ER visits, and the route care of more than 10 medical specialists. Through all of that, I can think of only two times that this has been an issue. In one case, after gently requesting clarification there were no… read more
@A myALZteam Member, I think you are on to something - compassion, love, and kindness, plus a bit of common sense goes a long way in caring for someone with dementia. Knowledge is powerful when added… read more
Good luck! I hope you are able to find a solution that works for you! Sending hugs and support!❤️
Quoting from the Columbia University website: "Our ability to understand how Alzheimer's disease affects the brain and causes debilitating memory loss, confusion, and eventually death, is dependent upon studying brain tissue."
Research is SO important. I'm wondering if anyone else is considering this.
You can find information at the weblink below (National Institute on Aging).
https://www.nia.nih.gov/health/brain-donation/b...
Didn't with my husband. But with Clyde that could be a thought for discussion. I doubt he would agree to it.
Yesterday was a "Groundhog Day" of repetitive questions, with my hubby. This has happened before, but not quite like yesterday. When I told him that he had already asked that question 20 times, and that I had already answered it 20 times, he still insisted that he's just fine. (And it happened with more than one question.)
But after answering 20 times, I lose my patience. If I yell, then he "wakes up" and sometimes the answer will penetrate, but I feel just terrible afterward, and it makes… read more
Yes, I too have experienced a rapid progression. My husband is 84 and a year ago he was still driving. After an accident in May he's not allowed to drive anymore, but of course thinks he still can
I… read more
What is the difference between vascular dementia and Alzheimer's?
Here's a link to the Cleveland Clinic's explanation of Vascular Dementia:
https://my.clevelandclinic.org/health/diseases/...