Some days are harder than others for sure. It's like putting your finger in a light socket: every thing you do is wrong! I'm trying so hard to stay calm no matter what. I know Hubs is frustrated too. Not a fun journey: just try to do the best we can every day. I had him ride along to the grocery again today. He waits in the car & watches people. It's an outing.
Very well put - and I will keep that last thought close to my heart as its exactly what I'm trying to do. Thank you.
Pray for patience & strength.
Adjusting to a diagnosis of alzheimers is very hard. Your hubby is there, but he's not. All those things you depended on him for are changing and diminishing, emotionally and physically. As the disease progresses , you realize how much they gave you. It's such a diametric experience ....you realize your loss as it happens.
Your anger and frustration is adaptive and likely reactive to your experience of loss and change. The process of accepting and adjusting to the fact that they can't help it takes time. Yes, we shouldn't argue with them or get frustrated and have to learn to control our own feelings by learning new coping skills, but in the meantime, they can be mean or nasty or belligerent and you feel what you feel.
Try not to beat yourself up too much. Yes he's freaking out and dealing with his decline, but so are you and you're entitled to your feelings. It's a learning process....for both of you, and while he still has his cognitive abilities it can bring you closer together like never before. It's the love that is left at the end of the day and all that you do for him comes from it. Try to have faith that you will learn, you will cope and with dedication and support we all will get through it.
Stay strong and stay connected.
Sending hugs.
The diagnosis is not tangible and does not deserve anger. Focusing on the diagnosis as soon as possible enhances your ability to work with the diagnosis and definitively determine ways to stay the progression of this disease. This also gives you the ability to search answers, remedies and accept solutions found by others traveling this journey. Depending on the type of Alzheimer’s treatment varies. This disease is individual to each patient. You’re not facing a terminal illness such as cancer, this is a chronic illness which gives you the opportunity to provide care with kindness, compassion, love, respect, patience, diligence and dignity. Unfortunately, it is much harder on the patient who is aware something is wrong but unable to articulate what’s happening to them. You are the patients voice and care must be giving thinking “outside the box”. Mistakes and errors are learning tools to be shared with team members who probably have encountered the same difficulties. There are always alternatives to any action just journalize, learn and share. Remember always that this disease does not discriminate, it simply attacks. None of us are exempt. Give care as you would desire care had the situation been reversed. Be Blessed. 🌹🙏🏿❤️