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Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
December 3, 2022
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Answer Summary

Members shared deeply personal stories about the unpredictable progression of Alzheimer's and vascular dementia, with many describing long... Read more

Members shared deeply personal stories about the unpredictable progression of Alzheimer's and vascular dementia, with many describing long plateaus of 9 to 12 months followed by sudden declines often triggered by falls, seizures, hospitalizations, or stressful events. Several members offered hope through their experiences, including one person living with dementia who remains highly functioning after five years by staying social, learning piano, and focusing on what they can still do, while caregivers emphasized the importance of planning ahead, living day by day, and finding strength through faith and community support. A recurring theme was the emotional toll on both patients and caregivers, the difficulty of knowing when decline will happen, and the shared understanding that while the disease follows a similar path for everyone, each journey remains uniquely different.

A myALZteam Member

Richard a friend of mine in Florida had Az for 20 years. He kept social and his mind working. You are doing the same my friend good thoughts and prayers your way

December 5, 2022
A myALZteam Member

Thank you guys! So far so good!

December 5, 2022
A myALZteam Member

hi. My husband had Vascular Dementia. 2018 , Notice some differences. 2019 Diagnosed. as time went on living in his world, driving stopped, then got to be were I couldn’t leave him alone anymore, day in and out lots of Scenarios, hallucinations, disconnects , misinterpretations all together.Later end of 2020 into 2021 wanting to go home, I could be different people sometimes. Ask who am I . As you can imagine the Dementia mind, This year my husband which had been home the whole time, me caregiver of him . 50 years of marriage, it got to be where i could not redirect him anymore, He did not want to stay. thought so many different scenarios His eating (appetite) started to get smaller Had a Couple of falls, Had to take him in to hospital, the stay was almost 3 weeks, put him into memory care and almost 3 weeks to the day he passed away, He was walking more balanced with a walker and Had wheelchair, He thought he could take off without walker, mistake, he had a bad fall again, His eating and drinking that past month was staring to shut down, before his death he did not eat or drink like for 3 days, He still communicated with me to’ Was feeling nausea the night before, next morning the got him By his bed , come back and passed away, My husband was ready for the Lord to take him, He was Happy , he had family around him all times, felt like I was safe, He even ask me to marry him week before he passed’ We all have so many happy memories with him, This is a hard Journey, God held our hands daily through this journey. just be kind, loving understanding , make them feel loved and safe, Live in their world, Each Alzheimer’s/ vascular dementia patients can’t put a time on it on the way the progress’ All depends on the symptoms and underlying issues if they have any’ THIS IS A GREAT SITE TO LEARN FROM, to vent, to be supported and be a supporter. ask questions.blessings Debbie Sorry so long, This Journey is all the same but different❤️😇

December 3, 2022
A myALZteam Member

Bernie 2 I hope you wife passes peacefully and without pain. I have seen you on here since I started a couple of yrs. ago. Stay strong Bernie. I pray for strength for you.

April 2, 2023
A myALZteam Member

I hope you find a better day today. I think without his meds. he would have progressed faster. But how can I really tell unless he comes off of them and that is not going to happen anytime soon. I look at him and think, he isn't going to get that bad. Then I read stories and think so far we are Blessed.

April 1, 2023

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