Connect with others who understand.

sign up log in
About myALZteam

Connect with others who understand.

sign up log in
About myALZteam
Real members of myALZteam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

Myoclonus

Myoclonus

Does anyone have a loved one they are caring for that suffers from this? My husband’s doctor said they would not get worse but they have and they are frequent, sometimes last all day and night. He has suffered many falls

A myALZteam Member said:

I always thought my mother would live with us until she passed. Her sundowning, and wandering made that an unsafe option for her. She eventually needed a secure facility with 24 hr. Supervision. I recommend checking out your local facilities so you have a plan should that time arise. I agree with you, this disease is horrid. Enjoy each day you have with your mom. God bless you on your journey.

posted 5 months ago
A myALZteam Member said:

Hi Cv2! My Mom has myoclonic ticks and they can be very startling! She isn’t able to walk anymore, so I have less concerns about falls, but there have been some ticks that made me jump! For the most part, she seems quite undisturbed by them, though I do notice that she will get small bursts of hiccups that go away on their own. Her neurologist said that that is a form of myoclonus as well. I did have concerns when I first noticed them several years ago, because some people with Alzheimer’s develop parkinson’s-like tremors, but her ticks haven’t progressed that way. I’m so sorry this is causing auch a problem for your hisband and you. Sending hugs and support!❤️

posted 5 months ago
A myALZteam Member said:

So sorry for you both. My mom has had Alzheimer's I'd say maybe 4 or 5 years. Diagnosed two years ago. I worked a lot of hours and just thought it was age related until I noticed she would call me she would get lost driving. Even walking. So when a friend of hers had called me and said he thought something was up. I brought her to doctor then neurologist. She was diagnosed. She had all the testing mri. etc. I've heard she can be the way she is for years. She can't be left alone. She does shower but I have to get her shower ready and pick out clothes. I have her in depends because she had a few leaks and the little pads didn't cut it. I don't want her getting an infection so I keep her as clean as possible. I don't even know what stage she's in. She is sundowning. She can't use stove. I have locks and cameras because last summer I caught her walking outside like 1am. I was just reading about last stage and I'm so disturbed by what I read. Why did this illness even enter our lives or should I say even happens to people. I guess we all ask the same thing. I just never thought it would happen to my mom. She's always been healthy. Doctor says she is healthy. Body wise so I guess that's a good thing. I'm sorry I'm rambling because I'm so stressed and exhausted and wish I never read what I read. Sometimes to much information is not the best. Well hopefully everyone has a good evening and a nice sleep. Tomorrow is a new day🥰

posted 5 months ago
A myALZteam Member said:

My mom gets them off and on. Sometimes lasts all day. Sometimes it looks as though she is in pain when she has them but she doesn’t really understand if I ask her if she is in pain.

posted about 2 months ago
A myALZteam Member said:

Thank you🥰

posted 5 months ago
Already a Member? Log in