I have recently made the decision to start the process as I know its time...mostly for me as I am becoming sick....but also for D's safety. He really diesnt know his own house of 55 years and I don't think he recognizes me only as a caregiver...we have a wonderful regular caregiver but only for 12xhr a week.
Hi Betty, just noticing this letter now. D did not get accepted fir the Bungalows. I was so disappointed....but I have checked the next option and I have finally accepted that its going to be ok… read more
My dad is in a smaller pocket of early-onset Alzheimer’s males with aggression and is combative, (now late stage, 10 years since Dx) AND is allergic/has the paradoxical reactions to almost all meds used to target mood/behavior in Alz folks.
He’s still verbal, mobile, no where near frai. It’s been a 2.5 year struggle trying everything, doing this alone, no other family will help me, except my spouse, we upped and moved our whole lives here to care for him when my mom suddenly passed. I tried 5… read more
Oh I’m so sorry - I know this doesn’t help you but there must be some organisation out there fgs!! It’s awful, for you both. I hope you’re getting some help & support in all this too?? I’m in the UK… read more
I’ve tried every single trick in the book. Ive given it days. I’ve re-tried ALL the tricks. I’ve washed all the sheets. He won’t wear “briefs.” I’ve tried all the tricks for those too. He knows they’re not his underwear, so he refuses and wears nothing under his shorts.
My Dad is a big guy and I can’t force him to change his clothes, his underwear, shower or use body wipes. I’m telling you, I’ve tried everything. So when you’ve tried everything and even the caregivers can’t get your LO to… read more
As for the weaning him into disposable underwear we let my husband wear both his own underwear and disposable at the same time. My husband was picky about the color and type, trial and error. Can't… read more
Many of us have already learned the hard way that incontinence is an inevitable part of the dementia landscape. I frequently use the shower to get my wife clean again but I’ve been wondering about bidet attachments for the toilet. Does anyone have any experience with them? Are they practical to use for the dementia patient? Expensive to purchase and install? Thanks
There’s a really affordable one called the Tushy that’s not complex and easy to install. Just not sure if it’s something that can be learned now. But best wishes and great thinking on this one. Maybe… read more
A couple of days ago, I was given a 45 day eviction notice for my husband from the director of his memory care residence. She told me he should be in a skilled nursing facility, where they can keep him sedated. She told me that, even if another memory care decides to accept him, I’ll likely end up getting an eviction notice for him from them, too. But the nursing homes, I’ve contacted, seem to respond as if I’ve got my head up my butt. And they tell me they’re not equipped to handle dementia.
… read moreButton, from what I’ve read here from several myalzteam members, whose husbands are in Veteran’s homes, the care sounds very good there. Assisted Living/Memory Care are only state regulated, and the… read more
What are some of your favorite songs that keep you going? All songs welcomed-religious or not!! I want a playlist to listen to for the hard days and to share with other caregivers.
My husband loves Amazing Grace we sing it when he is having trouble focusing.
Yes, scam.
Will she know the difference? It might be good for her
Quoting from the Columbia University website: "Our ability to understand how Alzheimer's disease affects the brain and causes debilitating memory loss, confusion, and eventually death, is dependent upon studying brain tissue."
Research is SO important. I'm wondering if anyone else is considering this.
You can find information at the weblink below (National Institute on Aging).
https://www.nia.nih.gov/health/brain-donation/b...
Didn't with my husband. But with Clyde that could be a thought for discussion. I doubt he would agree to it.
Great news @A myALZteam Member.